Epilepsy Sparks Insights

Supporting people with Intellectual Disability & Epilepsy - Prof. Rohit Shankar, MBE

Rohit Shankar, MBE; is a professor and consultant in developmental neuropsychiatry for adults with Intellectual Disabilities - many of whom also have epilepsy. Rohit and Torie talk about his work with people affected, their carers, families, SUDEP, psychiatric comorbidities, and what we need to do to provide people affected with an improved quality of life. Rohit is a professor in Neuropsychiatry at the University of Plymouth Medical School, director of its Cornwall Intellectual Disability Equitable Research (CIDER) unit, and Consultant in developmental Neuropsychiatry & Clinical Director at Cornwall Partnership NHS FT, and Chair of the South West Royal College of Psychiatrists.**CONNECT WITH ROHIT**• LinkedIn: https://www.linkedin.com/in/rohit-shankar-71a53376• Twitter: https://twitter.com/haritsa1 • Facebook: https://www.facebook.com/rohit.shankar.10 **READ ABOUT ROHIT’S WORK**• RCPsych: https://www.rcpsych.ac.uk/about-us/our-people-and-how-we-make-decisions/council/council-members/detail/dr-rohit-shankar https://www.rcpsych.ac.uk/docs/default-source/improving-care/better-mh-policy/position-statements/position-statement-ps0521-stomp-stamp.pdf?sfvrsn=684d09b3_6 • CIDER – Cornwall Intellectual Disability Equitable Research: https://www.plymouth.ac.uk/research/cider-cornwall-intellectual-disability-equitable-research • ILAE: https://www.ilae.org/about-ilae/awards/epileptic-disorders-educational-prize/rohit-shankar-2018 • ResearchGate: https://www.researchgate.net/profile/Rohit_Shankar2 • BMJ - SUDEP Action: https://sudep.org/article/epilepsy-safety-education-tools-win-prestigious-medical-award **CHECK OUT THE YOUTUBE VIDEO WITH ROHIT**• YouTube: https://www.youtube.com/c/TorieRobinson**CONNECT WITH TORIE**• Website:https://www.torierobinson.com• Twitter:https://twitter.com/torierobinson10• LinkedIn:https://www.linkedin.com/

The effects of cannabidiol (CBD) on microRNA expressions in epilepsy - Mona Heiland

Meet Mona Heiland, a final year Ph.D. student from RCSI, Ireland who under the supervision of Prof David Henshall is studying the effects ofcannabidiol (CBD) on microRNA expressions in epilepsy.CBD has shown its potential as an Anti-Seizure Medication; especially for drug-refractory genetic types of epilepsy, however, the underlying molecular mechanisms of CBD’s anti-seizure activities are still unknown. Mona investigates whether the anti-seizure effects of CBD are dependent on the regulation of microRNAs. **CONNECT WITH MONA**• Twitter: https://twitter.com/MonaHeiland **READ ABOUT MONA’S WORK**• Website: https://www.futureneurocentre.ie/people/mona-heiland • ResearchGate: https://www.researchgate.net/profile/Mona-Heiland • RCSI: https://repository.rcsi.com/authors/Mona_Heiland/7896944 **CHECK OUT THE YOUTUBE VIDEO WITH MONA**• YouTube: https://www.youtube.com/c/TorieRobinson/videos **CONNECT WITH TORIE**• Website:https://www.torierobinson.com• Twitter:https://twitter.com/torierobinson10• LinkedIn:https://www.linkedin.com/torierobinson• Facebook:https://www.facebook.com/TorieRobinsonSpeaker **CHECK OUT TORIE’S YOUTUBE & BLOG**• YouTube: https://www.youtube.com/c/TorieRobinson• Blog: https://www.torierobinson.com/blog**HIRE TORIE AS A SPEAKER ON EPILEPSY, MENTAL HEALTH, DISABILITY, & DIVERSITY**https://www.torierobinson.com/contact

Developing a preconception care pathway for women with epilepsy - Dr. Janine Winterbottom

Meet Dr. Janine Winterbottom, an Advanced Nurse Specialist in Epilepsy and Independent Nurse Prescriber from The Walton Centre NHS Foundation Trust in Liverpool, UK. Janine is doing research into how best to care for and empower women affected by epilepsy when it comes to planning children (or planning not to have children!). Janine strongly encourages Patient Involvement! Watch/listen to learn more. **FOR MORE INFO ON THE STUDY**Check out the video: epilepsypreconceptionstudyCall the research team (UK): 0151 556 3721Email the research team: preconceptionstudy@thewaltoncentre.nhs.uk**CONNECT WITH JANINE**• LinkedIn: https://www.linkedin.com/in/janine-winterbottom-209053128 • Facebook: https://www.facebook.com/janine.winterbottom.75**READ ABOUT JANINE’S WORK**• Website: https://www.thewaltoncentre.nhs.uk/News/376/new-animation-aims-to-give-epilepsy-patients-confidence-to-start-a-family.html • ResearchGate: https://www.researchgate.net/profile/Janine-Winterbottom-2 **CHECK OUT THE YOUTUBE VIDEO WITH JANINE**• YouTube: https://www.youtube.com/c/TorieRobinson**CONNECT WITH TORIE**• Website:https://www.torierobinson.com• Twitter:https://twitter.com/torierobinson10• LinkedIn:https://www.linkedin.com/torierobinson• Facebook:https://www.facebook.com/TorieRobinsonSpeaker **CHECK OUT TORIE’S YOUTUBE & BLOG**• YouTube: https://www.youtube.com/c/TorieRobinson• Blog: https://www.torierobinson.com/blog**HIRE TORIE AS A SPEAKER ON EPILEPSY, MENTAL HEALTH, DISABILITY, & DIVERSITY**https://www.torierobinson.com/contact

What causes epilepsy? That is the question - Professor Gavin Woodhall

Meet Prof. Gavin Woodhall, a neuropharmacologist, epilepsy researcher, and director for the Institute for Health and Neurodevelopment at Aston University, Birmingham, UK. Or, as Gavin would say “Mostly, I just run a lab!”. Gavin is particularly interested in severe epilepsy syndromes. A key question of his is “What makes a brain develop epilepsy (epileptogenesis)?”**CONNECT WITH GAVIN**• LinkedIn :https://www.linkedin.com/in/gavin-woodhall-a2bba312**READ ABOUT GAVIN’S WORK**• Website: https://research.aston.ac.uk/en/persons/gavin-l-woodhall • ResearchGate: https://www.researchgate.net/profile/Gavin-Woodhall **CHECK OUT THE YOUTUBE VIDEO WITH GAVIN**• YouTube: https://www.youtube.com/c/TorieRobinson**CONNECT WITH TORIE**• Website:https://www.torierobinson.com• Twitter:https://twitter.com/torierobinson10• LinkedIn:https://www.linkedin.com/torierobinson• Facebook:https://www.facebook.com/TorieRobinsonSpeaker **CHECK OUT TORIE’S YOUTUBE & BLOG**• YouTube: https://www.youtube.com/c/TorieRobinson• Blog: https://www.torierobinson.com/blog**HIRE TORIE AS A SPEAKER ON EPILEPSY, MENTAL HEALTH, DISABILITY, & DIVERSITY**https://www.torierobinson.com/contact

Developing epilepsy through tapeworms - Professor Ley Sander

Meet Professor Ley Sander, a consultant neurologist at the National Hospital for Neurology and Neurosurgery, London, with a special interest in epilepsy.Ley is Head of the Department of Clinical and Experimental Epilepsy at UCL Queen Square and works across the continents to empower those in LMICs (Low-Middle Income Countries) regarding epilepsy prevention, treatment, and seizure control. Ley also has a talent for photography!We talk about how Ley got into his passion for helping people affected by epilepsy, his work today, and some of the clear obstacles when it comes to minimising epilepsy cases - such as clean water. **CONNECT WITH LEY**• LinkedIn: https://www.linkedin.com/in/ley-sander-223645b • Twitter: https://twitter.com/leysander• Instagram: https://instagram.com/ley.sander**READ ABOUT LEY’S WORK**• UCLH: https://www.uclh.nhs.uk/our-services/find-consultant/professor-ley-sander • Epilepsy Pathway Innovation in Africa: https://epina.web.ox.ac.uk • ResearchGate: https://www.researchgate.net/profile/Ley-Sander • Epilepsy Society: https://epilepsysociety.org.uk/latest/news/top-epilepsy-expert-nine-years & https://epilepsysociety.org.uk/what-we-do/research/our-researchers/ley-sander  • The Lancet Neurology: https://www.thelancet.com/laneur/editorial-advisory-board **CHECK OUT THE YOUTUBE VIDEO WITH LEY**• YouTube: https://youtu.be/G-UD2SvUcvo**CONNECT WITH TORIE**• Website: https://www.torierobinson.com• Twitter: https://twitter.com/torierobinson10• LinkedIn: https://www.linkedin.com/torierobinson• Facebook: https://www.facebook.com/TorieRobinsonSpeaker **CHECK OUT TORIE’S YOUTUBE & BLOG**• YouTube: https://www.youtube.com/c/TorieRobinson• Blog: https://www.torierobinson.com/blog**HIRE TORIE AS A SPEAKER ON EPILEPSY, MENTAL HEALTH, DISABILITY, & DIVERSITY**https://www.torierobinson.com/contact

Beautiful neuroimaging and epilepsy research - Professor Simon Keller

Meet Professor Simon Keller, an imaging neuroscientist from the University of Liverpool. Simon tells us about his neuroimaging work, his passion for helping those affected by epilepsy, and his cool images!  **CONNECT WITH SIMON**Twitter: https://twitter.com/BrainImagingUoL **READ ABOUT SIMON’S WORK**ResearchGate: https://www.researchgate.net/profile/Simon-Keller-2 **The Liverpool BRAIN lab (Brain Research using Advanced Imaging in Neurology)https://www.liverpool.ac.uk/translational-medicine/research/brain-imaging/ University of Liverpool: https://www.liverpool.ac.uk/systems-molecular-and-integrative-biology/staff/simon-keller **CHECK OUT THE YOUTUBE VIDEO WITH SIMON**YouTube:  https://youtu.be/2gxoNo9hmN4**CONNECT WITH TORIE**Website:https://www.torierobinson.comTwitter:https://twitter.com/torierobinson10 LinkedIn:https://www.linkedin.com/torierobinsonFacebook:https://www.facebook.com/TorieRobinsonSpeaker **CHECK OUT TORIE’S YOUTUBE & BLOG**YouTube: https://www.youtube.com/c/TorieRobinsonBlog: https://www.torierobinson.com/blog**HIRE TORIE AS A SPEAKER ON EPILEPSY, MENTAL HEALTH, DISABILITY, & DIVERSITY**https://www.torierobinson.com/contact

Motivation as a neurologist, neurophysiologist & epileptologist - Professor Sándor Beniczky

Professor Sándor Beniczky from AARHUS University and The Epilepsy Hospital, Denmark, talks with Torie about his role as a neurologist, neurophysiologist, epileptologist, researcher, and lecturer, and how the research taking place today will change the world of PWE (People with Epilepsy) in the future, for the better.**CONNECT WITH SÁNDOR**• LinkedIn: https://www.linkedin.com/in/s%C3%A1ndor-beniczky-2a6a4a11• Twitter: https://twitter.com/SBeniczky• Facebook: https://www.facebook.com/profile.php?id=100014300773973 **READ ABOUT SÁNDOR’S WORK**• ResearchGate: https://www.researchgate.net/profile/Sandor-Beniczky• The Epilepsy Hospital: http://www.filadelfia.dk/en/epilepsihospitalet • AARHUS University: https://pure.au.dk/portal/en/persons/sndor-beniczky(7080ac19-d0e8-494a-8a88-96de52d4e55d).html • ILAE: https://www.ilae.org/sandor-beniczky **CHECK OUT THE YOUTUBE VIDEO WITH SÁNDOR**• YouTube: https://youtu.be/MRN0Yf836tY **CONNECT WITH TORIE**• Website: https://www.torierobinson.com• Twitter: https://twitter.com/torierobinson10• LinkedIn: https://www.linkedin.com/torierobinson• Facebook: https://www.facebook.com/TorieRobinsonSpeaker **CHECK OUT TORIE’S YOUTUBE & BLOG**• YouTube: https://www.youtube.com/c/TorieRobinson• Blog: https://www.torierobinson.com/blog**HIRE TORIE AS A SPEAKER ON EPILEPSY, MENTAL HEALTH, DISABILITY, & DIVERSITY**https://www.torierobinson.com/contact

Epilepsy Gene Therapy by an epilepsy research fellow - Asst. Prof. Gabriele Lignani, QS, UCL

Meet Asst. Prof. Gabriele Lignani: the Principal Investigator, Senior Research Fellow, & Biotechnologist at the University for Neurology and Neurosurgery, Queen Square, London, and recent winner of the Harinarayan Young Neuroscientist Award 2021 for his research into Activity-dependent Gene Therapy for Intractable Epilepsy! Gabriele speaks with Torie about researching gene therapy for epilepsy and his journey into epilepsy research.CONNECT WITH GABRIELELinkedIn: https://www.linkedin.com/in/gabriele-lignani-288b9023Twitter: https://twitter.com/LignaniLab_UCL & https://twitter.com/gabrilignani READ ABOUT GABRIELE’S WORKWebsite: https://www.lignanilab.comResearchGate: https://www.researchgate.net/profile/Gabriele-Lignani Rare Revolution interview: https://bit.ly/3reUJacREAD THE INTERVIEW WITH GABRIELEhttps://www.torierobinson.com/blog/gabriele-lignani-gene-therapy CONNECT WITH TORIEWebsite: https://www.torierobinson.comTwitter: https://twitter.com/torierobinson10LinkedIn: https://www.linkedin.com/torierobinsonFacebook: https://www.facebook.com/TorieRobinsonSpeaker CHECK OUT TORIE’S YOUTUBE & BLOGYouTube: https://youtube.com/c/TorieRobinsonBlog: https://www.torierobinson.com/blog

Temporal lobe epilepsy research from a scientist, epilepsy researcher & editor - Dr. Gareth Morris

Meet Dr. Gareth Morris, a neuroscientist at FutureNeuro, honorary lecturer at RCSI, and Editor of Epilepsy In English. We talk about his research into temporal lobe epilepsy, how he first got into and what attracted him to epilepsy research, and how much it means to him to hear from people with epilepsy! You’ll also hear a bit about his cool website and blog.**CONNECT WITH GARETH MORRIS**• LinkedIn: https://www.linkedin.com/in/gareth-morris • Twitter: https://twitter.com/GarethMorris5 **READ ABOUT GARETH’S WORK**• Website: https://www.epilepsyinenglish.ie • ResearchGate: https://www.researchgate.net/profile/Gareth-Morris-3 • FutureNeuro: https://www.futureneurocentre.ie/people/gareth-morris **CHECK OUT THE YOUTUBE VIDEO WITH GARETH**• YouTube: https://www.youtube.com/c/TorieRobinson**CONNECT WITH TORIE**• Website:https://www.torierobinson.com• Twitter:https://twitter.com/torierobinson10• LinkedIn:https://www.linkedin.com/torierobinson• Facebook: https://www.facebook.com/TorieRobinsonSpeaker **CHECK OUT TORIE’S YOUTUBE & BLOG**• YouTube: https://www.youtube.com/c/TorieRobinson• Blog: https://www.torierobinson.com/blog**HIRE TORIE AS A SPEAKER ON EPILEPSY, MENTAL HEALTH, DISABILITY, & DIVERSITY & INCLUSION**https://www.torierobinson.com/contact

Neuroscience - researching the rare epilepsy CDKL5 - Dr. Omar Mamad

Neuroscientist and genetic epilepsy researcher Dr. Omar Mamad tells us how he got into his work, his speciality - from Morocco to Ireland - via France, and how he is changing the world for those affected by the rare epilepsy CDKL5; step by step.**CONNECT WITH OMAR**• Website: https://www.omarmamad.com • Twitter: https://twitter.com/MamadOmar5 • LinkedIn: https://www.linkedin.com/in/omar-mamad • Facebook: https://www.facebook.com/omar.mamad **OMAR'S ASSOCIATE ORGANISATIONS**• FutureNeuro: https://www.futureneurocentre.ie• RCSI: https://www.rcsi.com/dublin • Epilepsy Sparks: https://www.epilepsysparks.com• CDKL5UK:https://curecdkl5.org.uk • CDKL5 Ireland: http://cdkl5.ie**UPCOMING CDKL5 ALLIANCE MEETING - 19 JUNE 2021**https://www.cdkl5alliance.org/cdkl5-events**CHECK OUT THE YOUTUBE VIDEO WITH OMAR**• https://www.youtube.com/watch?v=kXTXn1rWtBw&t=45s**CONNECT WITH TORIE**• Website: https://www.torierobinson.com• Twitter: https://twitter.com/torierobinson10• LinkedIn: https://www.linkedin.com/torierobinson• Facebook: https://www.facebook.com/TorieRobinsonSpeaker**CHECK OUT TORIE’S YOUTUBE & BLOG**• YouTube: https://www.youtube.com/c/TorieRobinson• Blog: https://www.torierobinson.com/blog**HIRE TORIE AS A SPEAKER ON EPILEPSY, MENTAL HEALTH, DISABILITY, & DIVERSITY**https://www.torierobinson.com/contact