Epilepsy Sparks Insights

Sparking interest and understanding in the epilepsies whilst bridging the communication gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Hosted by Torie Robinson. **NOT FOR CLINICAL OR PATIENT DECISION-MAKING* Visit www.torierobinson.com & www.epilepsysparks.com.

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Episodes

Thursday Jun 24, 2021

FutureNeuro & the Royal College of Surgeons in Ireland talk about epilepsy, epilepsy tech, patient empowerment, and their PiSCES Epilepsy Patient Portal work! We hear from a carer, researcher, nurse, and investigator who are all working towards bettering the lives of people affected by epilepsy.FEATURING: • Dr. Kevin Power, post-doc researcher at FutureNeuroFind Kevin on Twitter: https://twitter.com/KevinPowerPhD1 • Maíre White, Advanced Epilepsy Nursing Practitioner, Beaumont Hospital• Susan Dolan, Care Partner & Mam of a Person Living With Epilepsy• Mary Fitzsimons, Principal Investigator at FutureNeuro & PiSCESFind Mary on Twitter: https://twitter.com/swordsonsunday **PiSCES**• Pdf: https://www.futureneurocentre.ie/wp-content/uploads/2020/10/Pisces-Newsletter_Autumn-2020-KP.pdf **FUTURENEURO**• Website: https://www.futureneurocentre.ie**RCSI**• Website: https://www.rcsi.com**CONNECT WITH FUTURENEURO**• Website: https://www.futureneurocentre.ie • Twitter: https://twitter.com/Futureneuro_ie • Facebook: https://www.facebook.com/FutureNeuroCentre • LinkedIn: https://www.linkedin.com/company/futureneuro **CHECK OUT THE YOUTUBE VIDEO WITH THE TEAM**• YouTube: https://www.youtube.com/watch?v=86-_odVwjmA&t=182s **CONNECT WITH TORIE**• Website: https://www.torierobinson.com• Twitter: https://twitter.com/torierobinson10• LinkedIn: https://www.linkedin.com/torierobinson• Facebook: https://www.facebook.com/torierobinson10**CHECK OUT TORIE’S YOUTUBE & BLOG**• YouTube: https://www.youtube.com/c/TorieRobinson• Blog: https://www.torierobinson.com/blog

Thursday Jun 17, 2021

Meet cannabis scientist, educator, and campaigner Dr. Callie Seaman - who also has epilepsy. Talking diagnosis, stripping during seizures, and treatments - including those derived from cannabis plants. Callie has a UK-licensed medical cannabis cultivation research facility and completed her Ph.D. focussing on Fertiliser Chemistry.**CONNECT WITH CALLIE**• LinkedIn: https://www.linkedin.com/in/dr-callieseaman • Twitter: https://twitter.com/dr_CallieSeaman • Website: https://aqualabs-uk.com **CHECK OUT THE YOUTUBE VIDEO WITH CALLIE**• YouTube: https://youtu.be/zRuaPbyAj4c**CONNECT WITH TORIE**• Website: https://www.torierobinson.com• Twitter: https://twitter.com/torierobinson10• LinkedIn: https://www.linkedin.com/torierobinson• Facebook: https://www.facebook.com/torierobinso...**CHECK OUT TORIE’S YOUTUBE & BLOG**• YouTube: https://www.youtube.com/c/TorieRobinson• Blog: https://www.torierobinson.com/blog**HIRE TORIE AS A SPEAKER ON EPILEPSY, MENTAL HEALTH, DISABILITY, & DIVERSITY**https://www.torierobinson.com/contact

Thursday Jun 10, 2021

Meet Learning Disabilities Nurse (with a specialisation in epilepsy) & CEO of Pretola Global Health Consulting, Tolu Olanyan. Torie and Tolu talk about how Tolu got into her profession and what she wants to achieve when it comes to epilepsy in LMIC.**CONNECT WITH TOLU OLANYAN**• Website: https://www.pretolaghc.net• Twitter: https://twitter.com/Precious1Tolu• LinkedIn: https://www.linkedin.com/in/tolu-olaniyan• Facebook: https://www.facebook.com/tolu.precious.3**PRETOLA GLOBAL HEALTH CONSULTING**• Website: https://www.pretolaghc.net• Twitter: https://twitter.com/PretolaGHC• LinkedIn: https://www.linkedin.com/company/pretolaghc• Facebook: https://www.facebook.com/PretolaGHC• YouTube: https://www.youtube.com/channel/UCZLNzDX_xifBSv_BXIATakg**CHECK OUT TORIE’S BLOG**https://www.torierobinson.com/blog**HIRE TORIE AS A SPEAKER ON EPILEPSY, MENTAL HEALTH, DISABILITY, & DIVERSITY**https://www.torierobinson.com/contact**CONNECT WITH TORIE**• Website: https://www.torierobinson.com• Twitter: https://twitter.com/torierobinson10• LinkedIn: https://www.linkedin.com/torierobinson• Facebook: https://www.facebook.com/torierobinsonspeaker• YouTube: https://www.youtube.com/c/TorieRobinson

Tuesday Jan 05, 2021

Meet Dr. Jim Morrow, a former Neurologist from Northern Ireland, with whom we are talking about Sodium Valproate, aka Epilim, its feature in the UK Government's "Cumberlege Review", and why it has been called a "public health scandal" by some.Sodium Valproate is a medicine commonly used to treat epilepsy (and bipolar actually) and has been around since the 1960s. You'll find it referred to mainly as Valproate in this podcast.**CHECK OUT JIM**• BMJ: https://pn.bmj.com/content/16/2/162• Belfast Telegraph: https://www.belfasttelegraph.co.uk/news/health/belfast-doctor-who-earned-global-reputation-for-treating-epilepsy-found-he-had-condition-himself-36706294.html• Epilepsy Action: https://www.epilepsy.org.uk/news/news/dr-jim-morrow-receives-special-recognition-award-outstanding-contribution-treatment**CHECK OUT THE YOUTUBE VIDEO WITH JIM**• YouTube: https://www.youtube.com/watch?v=xd1Jt12x27g&t=586s**CONNECT WITH TORIE**• Website:https://www.torierobinson.com• Twitter:https://twitter.com/torierobinson10• LinkedIn:https://www.linkedin.com/torierobinson• Facebook: https://www.facebook.com/TorieRobinsonSpeaker **CHECK OUT TORIE’S YOUTUBE & BLOG**• YouTube: https://www.youtube.com/c/TorieRobinson• Blog: https://www.torierobinson.com/blog**HIRE TORIE AS A SPEAKER ON EPILEPSY, MENTAL HEALTH, DISABILITY, & DIVERSITY & INCLUSION**https://www.torierobinson.com/contact

Thursday Dec 10, 2020

Learn about what it's like to be a highly specialised paediatric clinical physiologist (often known as a neurophysiologist) - that person who does EEGs for children  - and more! I interviewed the really cool Dr. Stuart Smith from Great Ormond Street Hospital for Children NHS Foundation Trust, London!Stuart talks about how he makes children more relaxed and how parents can help their children chill during an EEG, psychosocial implications, his studies into epilepsy (his Ph.D.) at the Pal Lab at King's College London, and more!**CONNECT WITH STUART**• LinkedIn: https://www.linkedin.com/in/stuarteeg• Twitter: https://twitter.com/Neurospindle**READ ABOUT STUART'S WORK**• WILEY: https://onlinelibrary.wiley.com/doi/10.1002/epi4.12468 • KCL: https://kclpure.kcl.ac.uk/portal/en/theses/a-longitudinal-study-of-brain-structure-and-function-in-rolandic-epilepsy-between-active-epilepsy-and-seizure-remission(ae6bffdb-31c6-4a17-904d-3eb377471e00).html **CONNECT WITH TORIE**• Website:https://www.torierobinson.com• Twitter:https://twitter.com/torierobinson10• LinkedIn:https://www.linkedin.com/torierobinson• Facebook: https://www.facebook.com/TorieRobinsonSpeaker **CHECK OUT TORIE’S YOUTUBE & BLOG**• YouTube: https://www.youtube.com/c/TorieRobinson• Blog: https://www.torierobinson.com/blog**HIRE TORIE AS A SPEAKER ON EPILEPSY, MENTAL HEALTH, DISABILITY, & DIVERSITY & INCLUSION**https://www.torierobinson.com/contact

Tuesday Oct 20, 2020

Meet Sammy Ashby and Jennifer Thorpe from SUDEP Action, learn how to minimise your risk of SUDEP, and better your life/that of the person you care about.We mention brilliant leaders in the field including Dr. Rohit Shankar (MBE), Dr. Rhys Thomas, and Assistant Professor Arjune Sen!**CONNECT WITH SAMMY & JENNIFER**• LinkedIn: https://www.linkedin.com/in/sammyashby, https://www.linkedin.com/in/jennifer-thorpe-771989131• Twitter: https://twitter.com/SammyatSUDEP, https://twitter.com/Jennifert_SUDEP**READ ABOUT SUDEP ACTION'S WORK**• Website: https://sudep.org• Twitter: https://twitter.com/SudepAction• LinkedIn: https://www.linkedin.com/company/sudep-action• Facebook: https://www.facebook.com/SUDEPAction.org• Instagram: https://www.instagram.com/sudepaction**CHECK OUT THE YOUTUBE VIDEO WITH SAMMY & JENNIFER**• YouTube: https://www.youtube.com/watch?v=de7wvAcoEOU&t=101s**CONNECT WITH TORIE**• Website: https://www.torierobinson.com• Twitter: https://twitter.com/torierobinson10• LinkedIn: https://www.linkedin.com/torierobinson• Facebook: https://www.facebook.com/TorieRobinsonSpeaker • Instagram: https://www.instagram.com/torierobinson10**CHECK OUT TORIE’S YOUTUBE & BLOG**• YouTube: https://www.youtube.com/c/TorieRobinson• Blog: https://www.torierobinson.com/blog**HIRE TORIE AS A SPEAKER ON EPILEPSY, MENTAL HEALTH, DISABILITY, & DIVERSITY & INCLUSION**https://www.torierobinson.com/contact

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