Epilepsy Sparks Insights

Anti-Seizure Medication Management: Adherence & Statistics - Samuel Terman

Today we talk to Samuel Terman; an epileptologist and researcher from the University of Michigan, USA, who specialises in helping people affected by seizures and epilepsy. Samuel tells us about his research into adherence to medications, polypharmacy, deprescribing, and the high rate of multiple disabilities amongst those with epilepsy. Samuel’s work focuses on optimising the delivery of medical care for patients with epilepsy, through medication decisions, hospital utilisation and readmissions, and inpatient seizure monitoring quality of care.---Glossary: There are many terms used in this recording which you can find in the Epilepsy Sparks Glossary (useful for clinicians as well as patients/families): here: ww.epilepsysparks.com/glossary ---More about Samuel: www.torierobinson.com/epilepsy-sparks-insights/samuel-terman---Glossary:There are many terms used in this recording which you can find in the Epilepsy Sparks Glossary: https://www.epilepsysparks.com/glossary---Follow Torie on:Twitter: https://twitter.com/torierobinson10LinkedIn: https://www.linkedin.com/torierobinsonInstagram: https://www.instagram.com/torierobinson10Facebook: https://www.facebook.com/TorieRobinsonSpeakerCheck out the website: https://www.torierobinson.com

Supporting People With Epilepsy, Learning Disabilities, & Mental Health Challenges - Mike Kerr

Mike Kerr is a globally recognised, award-winning Neuropsychiatrist who talks about his specialist career in improving the lives of people affected by epilepsy - alongside learning disability, and mental health conditions. Mike is the Emeritus Professor of Learning Disability Psychiatry, Department of Psychological Medicine at Cardiff University, and Honorary Professor at the School of Medicine at Swansea University. ---More about Mike: www.torierobinson.com/epilepsy-sparks-insights/mike-kerr---Follow Torie on:- Website: https://www.torierobinson.com- Twitter: https://twitter.com/torierobinson10- LinkedIn: https://www.linkedin.com/torierobinson- Facebook: https://www.facebook.com/TorieRobinsonSpeaker- YouTube: https://www.youtube.com/channel/UCm02kiQ3Jd1PrIyJgC0tYMw 

Differentiating Between Epileptic & Functional Seizures - Wesley Kerr

Wesley Kerr is both a clinical epilepsy fellow at the University of Michigan, US, and a machine-learning statistician. Wesley works to improve the lives of people who experience epileptic and/or functional seizures. Wesley is big on helping patients and populations receive an accurate diagnosis earlier to hopefully have them respond better to treatments(s) and reduce negative impacts on their quality of life. Formerly completing his neurology residency and Ph.D. in biomathematics at UCLA, Wesley shall be next year spending the majority of his time in research. ---More about Wesley: https://www.torierobinson.com/epilepsy-sparks-insights/wesley-kerr---Glossary:There are many terms used in this recording which you can find in the Epilepsy Sparks Glossary: https://www.epilepsysparks.com/glossary ---Follow Torie on:Twitter: https://twitter.com/torierobinson10LinkedIn: https://www.linkedin.com/torierobinsonInstagram: https://www.instagram.com/torierobinson10 Facebook: https://www.facebook.com/TorieRobinsonSpeaker Check out the website: https://www.torierobinson.com

Constipation: A Common Gastrointestinal Disorder Amongst People With Epilepsy - Sally-Ann Remnant

Meet Sally-Ann Remnant,  a clinical nurse specialist in epilepsy who talks to us about her work and study into the impact of constipation upon people with epilepsy; particularly those who also have Intellectual Disability - and indeed how constipation can encourage seizures in some. Sally-Ann works at Brighton & Sussex University Hospitals NHS Trust and is a nurse consultant at Epilepsy Explained; providing training on epilepsy for professional carers and nurses.**CHECK OUT SALLY-ANN**LinkedIn: https://www.linkedin.com/in/sally-ann-remnant-0412b258 Facebook: https://www.facebook.com/epilepsyexplainedEpilepsy Explained: https://www.epilepsyexplained.co.uk ScienceDirect: “Constipation enhances the propensity to seizure in pentylenetetrazole-induced seizure models of mice”: https://www.sciencedirect.com/science/article/abs/pii/S1525505015000207 ESNA: https://esna-online.org **WATCH THE VIDEO WITH SALLY-ANN**YouTube: https://youtu.be/4qc3ZUs0HAE**CONNECT WITH TORIE*** Website: https://www.torierobinson.com* Twitter: https://twitter.com/torierobinson10* LinkedIn: https://www.linkedin.com/torierobinson* Instagram: https://www.instagram.com/torierobinson10 * Facebook: https://www.facebook.com/TorieRobinsonSpeaker **HIRE TORIE AS A SPEAKER ON EPILEPSY, MENTAL HEALTH, DISABILITY, & DIVERSITY**https://www.torierobinson.com/contact

Being An Epilepsy Research Scientist - Christos Lisgaras

Christos Lisgaras, a research scientist and post-doctoral fellow at the lab of Prof. Helen Scharfman at the NYU Nathan Kline Institute for Psychiatric Research talks about his epilepsy research, sharing results data, his passion for helping other young people develop their careers in the field of epileptology, and communicating effectively with PWE. Also spoken of are Christos' discoveries linking the epilepsies and Alzheimer's. **CHECK OUT CHRISTOS**LinkedIn: https://www.linkedin.com/in/clisgaras Twitter: https://twitter.com/Chris_Lisgaras  NKI: https://www.nki.rfmh.org/faculty/christos-lisgaras-phd Google Scholar: https://scholar.google.com/citations?hl=en&user=LLrTPmIAAAAJ&view_op=list_works&alert_preview_top_rm=2&sortby=pubdate ORCiD: https://orcid.org/0000-0003-3712-5993 **ILAE-YES (Young Epilepsy Section)**ILAE-YES: https://www.ilae.org/about-ilae/topical-commissions/yes/young-epilepsy-section-yes/about-us  YouTube: https://www.youtube.com/channel/UCm02kiQ3Jd1PrIyJgC0tYMw **CHECK OUT THE PODCAST WITH CHRISTOS**Available on Spotify, Apple, Google, Stitcher, Amazon Music, and Deezer - Type in “Epilepsy Sparks Insights”**CHECK OUT THE YOUTUBE VIDEO WITH CHRISTOS**YouTube: https://youtu.be/_8sYCx96oAQ **CONNECT WITH TORIE**Website: https://www.torierobinson.comTwitter: https://twitter.com/torierobinson10LinkedIn: https://www.linkedin.com/torierobinsonFacebook: https://www.facebook.com/TorieRobinsonSpeakerYouTube: https://www.youtube.com/channel/UCm02kiQ3Jd1PrIyJgC0tYMw **CHECK OUT TORIE’S YOUTUBE**YouTube: https://www.youtube.com/c/TorieRobinson**HIRE TORIE AS A SPEAKER ON EPILEPSY, MENTAL HEALTH, DISABILITY, & DIVERSITY**https://www.torierobinson.com/contact

AHC: The Genetic Epilepsy That Doesn’t Yet Make Sense - Alexis Arzimanoglou & Rosaria Vavassori

For the 10-year anniversary of its gene mutation identification, we today learn about the ultra-rare epilepsy: Alternative Hemiplegia of Childhood. Experts Rosaria Vavassoria and Prof. Alexis Arzimanoglou talk about their work to improve the lives of the families affected and indeed how far the understanding of AHC has come over the past decade! **CHECK OUT ROSARIA & ALEXIS**Rosaria- LinkedIn: https://www.linkedin.com/in/rosaria-vavassori- Facebook: https://www.facebook.com/IahcrcDataManager - EpiCARE: https://epi-care.eu/epicare-patient-representatives - IAHCRC: http://www.iahcrc.net - ResearchGate: https://www.researchgate.net/profile/Rosaria-VavassoriAlexis- LinkedIn: https://www.linkedin.com/in/alexis-arzimanoglou-ba743729 EpiCARE: https://epi-care.eu/members-of-epicare - Hospices Civils de Lyon: https://www.chu-lyon.fr/epilepsies-rares-et-complexes-un-reseau-europeen-coordonne-lyon - Sant Joan de Déu Barcelona Hospital: https://www.sjdhospitalbarcelona.org/en/alexis-arzimanoglouvds - ResearchGate: https://www.researchgate.net/scientific-contributions/Alexis-Arzimanoglou-2093846668 - ILAE: https://www.ilae.org/files/dmfile/Arzimanoglou--MC-_CV_2021.pdf **CHECK OUT THE YOUTUBE VIDEO WITH ROSARIA & ALEXIS**YouTube: https://youtu.be/rRuJim_TWzo **CONNECT WITH TORIE**- Website: https://www.torierobinson.com- Twitter: https://twitter.com/torierobinson10- LinkedIn: https://www.linkedin.com/torierobinson- Instagram: https://www.instagram.com/torierobinson10- Facebook: https://www.facebook.com/TorieRobinsonSpeaker  **HIRE TORIE AS A SPEAKER ON EPILEPSY, MENTAL HEALTH, DISABILITY, & DIVERSITY**https://www.torierobinson.com/contact

Chronic and Acute Conditions and Symptoms in People With Epilepsy - Wyatt Bensken

Meet Wyatt Bensken: an epidemiology and biostatistics academic from Case Western Reserve University, US, talking to us about his paper on the high prevalence of psychiatric and physical conditions amongst people with epilepsy, racial and ethnic disparities, and the need for policymakers to bring about change.**CHECK OUT WYATT**Website: https://wyattbensken.comLinkedIn: https://www.linkedin.com/in/wyattbensken Twitter: https://twitter.com/Wyatt_Bensken ResearchGate: https://www.researchgate.net/profile/Wyatt-Bensken-2 Paper in question: https://www.researchgate.net/publication/355687923_Burden_of_Chronic_and_Acute_Conditions_and_Symptoms_in_People_With_Epilepsy MDedge: https://www.mdedge.com/neurology/article/184175/business-medicine/think-research-just-md-phds-think-again **CHECK OUT THE YOUTUBE VIDEO WITH WYATT**           https://youtu.be/YdYARE1AJ78 **CONNECT WITH TORIE**Website: https://www.torierobinson.comTwitter: https://twitter.com/torierobinson10LinkedIn: https://www.linkedin.com/torierobinsonInstagram: https://www.instagram.com/torierobinson10 Facebook: https://www.facebook.com/TorieRobinsonSpeaker **HIRE TORIE AS A SPEAKER ON EPILEPSY, MENTAL HEALTH, DISABILITY, & DIVERSITY**           https://www.torierobinson.com/contact

Sex: When A Person Has Epilepsy - Charlotte Lawthom

Today we are talking about sex for people with epilepsy - with Charlotte Lawthom, a consultant Neurologist at Aneurin Bevan Health Board, professor at Swansea University, Wales, UK, and total dog-lover! Charlotte has a wonderful openness and passion for improving the lives of people affected by the epilepsies - including people with intellectual disability and other comorbidities. **CHECK OUT CHARLOTTE**LinkedIn: https://www.linkedin.com/in/charlotte-lawthom-aa32096b Twitter: https://twitter.com/CLawthom  ResearchGate: https://www.researchgate.net/scientific-contributions/Charlotte-Lawthom-2173039778**CHECK OUT THE YOUTUBE VIDEO WITH CHARLOTTE**YouTube: https://www.youtube.com/c/TorieRobinson/videos **CONNECT WITH TORIE**Website: https://www.torierobinson.comTwitter: https://twitter.com/torierobinson10LinkedIn: https://www.linkedin.com/torierobinsonFacebook:https://www.facebook.com/TorieRobinsonSpeaker **HIRE TORIE AS A SPEAKER ON EPILEPSY, MENTAL HEALTH, DISABILITY, & DIVERSITY**https://www.torierobinson.com/contact

How Seizure Detection Devices Can Improve Lives: EpiCare@Home - Julie Nys

Welcome to 2022! Our first interview of the year is with Julie Nys, Ph.D.; who tells us why she is working to improve the lives of people with epilepsy - through developing the seizure detection device: EpiCare@Home. For many, this shall play a part in diagnoses, effective treatments, patient and family, empowerment, and much, much more.Topics Julie and I chat about include: • Explaining the device• Product development• My experience in testing the device• Brain monitoring and insights• Personal evolution of epilepsy• How the EpiCare@Home compares to a "regular" EEG (quality, price, privacy)• Extending the monitoring period outside of the hospital• Brain activity patterns in the home environment• Reductions in cost to health providers• Speeding up precision medicine• Data quality• Patient involvement• Empowering users - adults, children, and carers• Working with (and not against) other software and device companies, neurologists, epilepsy care centres, etc.• Examples, and benefits of use• The shift from research to clinical practice• Improving communications between patient and clinicians**TERMS USED - FIND IN THE GLOSSARY:  https://www.epilepsysparks.com/glossary**EEG, video telemetry, ambulatory EEG, neurophysiologists, ASMs, comorbidities, data quality, precision medicinePeople mentioned: Prof. Rohit Shankar**CONNECT WITH TORIE**• Website: https://www.torierobinson.com• Twitter: https://twitter.com/torierobinson10• LinkedIn: https://www.linkedin.com/torierobinson• Facebook: https://www.facebook.com/TorieRobinsonSpeaker **HIRE TORIE AS A SPEAKER ON EPILEPSY, MENTAL HEALTH, DISABILITY, & DIVERSITY**https://www.torierobinson.com/contact**CHECK OUT JULIE, BYTEFLIES & Epicare@Home**• LinkedIn: https://www.linkedin.com/in/julie-nys-phd-884b1876• Twitter: https://twitter.com/JNys86 • epicare@home: https://www.epicareathome.com • Byteflies: https://www.byteflies.com/our-team **CHECK OUT THE VIDEO WITH JULIE**https://youtu.be/0BgrQ_sHJDU

Neuropsychology in Epilepsy Surgery - Sallie Baxendale

Today we are talking to Dr. Sallie Baxendale, a consultant neuropsychologist and part of the Epilepsy Surgery program meat the National Hospital for Neurology and Neurosurgery, Queens Square, London! We talk about her work in assessing and preparing People With Epilepsy for potential epilepsy neurosurgery, and how the mental health conditions experienced by many can form a huge part of the picture for people when it comes to surgery and quality of life.We also talk about the impact of social media when it comes to impacts on people with epilepsy, how it affects people, and what Sallie and her colleagues have learned from it. We also talk about the impact of social media when it comes to impacts on people with epilepsy, how it affects people, and what Sallie and her colleagues have learned from it. **CHECK OUT SALLIE**UCL: https://www.ucl.ac.uk/ion/news/2018/aug/dr-sallie-baxendale-receives-award-international-neuropsychological-society ResearchGate: https://www.researchgate.net/profile/Sallie-Baxendale Wiley: https://onlinelibrary.wiley.com/action/doSearch?ContribAuthorRaw=Baxendale%2C+Sallie Sallie’s book: https://www.amazon.co.uk/Coping-Memory-Problems-Sallie-Baxendale/dp/1529329213 British Psychological Society: https://thepsychologist.bps.org.uk/volume-31/october/neuropsychology-award ILAE: https://www.ilae.org/sallie-baxendale/contact **CHECK OUT THE YOUTUBE VIDEO WITH SALLIE**YouTube: https://bit.ly/32oU2mw**CONNECT WITH TORIE**Website: https://www.torierobinson.comTwitter: https://twitter.com/torierobinson10LinkedIn:https://www.linkedin.com/torierobinsonInstagram: https://www.instagram.com/torierobinson10 Facebook:https://www.facebook.com/TorieRobinsonSpeaker