Epilepsy Sparks Insights
Sparking interest and understanding in the epilepsies whilst bridging the communication gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Hosted by Torie Robinson. **NOT FOR CLINICAL OR PATIENT DECISION-MAKING* Visit www.torierobinson.com & www.epilepsysparks.com.
Episodes

Wednesday Mar 30, 2022
Wednesday Mar 30, 2022
Donna Walsh, CEO at the International Bureau for Epilepsy tells us what the organisation is doing right now and what they plan to do to help people with epilepsy in Ukraine.If you are interested in helping, contact Donna: donnawalsh@ibe-epilepsy.orgContact your government and pharmaceutical companies now to ask how they are helping people with epilepsy in Ukraine.---More about Donna and how you can help: https://www.torierobinson.com/epilepsy-sparks-insights/ukraine-donna-walsh---Follow Torie on:Twitter: https://twitter.com/torierobinson10LinkedIn: https://www.linkedin.com/torierobinsonInstagram: https://www.instagram.com/torierobinson10Facebook: https://www.facebook.com/TorieRobinsonSpeakerCheck out the website: https://www.torierobinson.com

Monday Mar 28, 2022
Monday Mar 28, 2022
Lori Hairrell, the program developer from the non-profit ROW Foundation, US, speaks of providing anti-seizure medications to people with epilepsy in Ukraine - and how we can help - by donating just $5/£4/€4 or just sharing this video!Contact your pharmaceutical company now to ask how they are helping people with epilepsy in Ukraine.---More about Lori, ROW Foundation supplying epilepsy drugs, and websites offering support: https://www.torierobinson.com/ukraine-row-foundation-lori-hairrell---Follow Torie on:Twitter: https://twitter.com/torierobinson10LinkedIn: https://www.linkedin.com/torierobinsonInstagram: https://www.instagram.com/torierobinsonFacebook: https://www.facebook.com/TorieRobinsonCheck out the website: https://www.torierobinson.com

Thursday Mar 24, 2022
Thursday Mar 24, 2022
More about Volodymyr and how you can help: https://www.torierobinson.com/epilepsy-sparks-insights/ukraine-volodymyr-kharytonov---Dr. Volodymyr Kharytonov, the neurologist and psychiatrist from Kyiv, Ukraine, is somehow smiling and saving the lives of people affected by the epilepsies! Please watch/listen to this for an uplifting moment in all of this turmoil. Learn how you can help, easily.---Contact your government and pharmaceutical companies now to ask how they are helping people with epilepsy in Ukraine.---Follow Torie on:Twitter: https://twitter.com/torierobinson10LinkedIn: https://www.linkedin.com/torierobinsonInstagram: https://www.instagram.com/torierobinson10Facebook: https://www.facebook.com/TorieRobinsonSpeakerCheck out the website: https://www.torierobinson.com

Thursday Mar 24, 2022
Thursday Mar 24, 2022
Rohit Marawar from Wayne State University, in Detroit, Michigan, tells us all about epilepsy and dementia in older adults; speaking of his research and how he helps his patients with diagnoses, care, and the cognitive process of memory. We also speak of getting started on medications, and why politicians must allocate greater, fairly allocated spending to help people affected by the epilepsies. ---Glossary:There are many terms used in this recording which you can find in the Epilepsy Sparks Glossary: https://www.epilepsysparks.com/glossary---Follow Torie on:Twitter: https://twitter.com/torierobinson10LinkedIn: https://www.linkedin.com/torierobinsonInstagram: https://www.instagram.com/torierobinson10Facebook: https://www.facebook.com/TorieRobinsonSpeakerCheck out the website: https://www.torierobinson.com

Tuesday Mar 22, 2022
Tuesday Mar 22, 2022
More about Piotr, Łukasz, and websites offering support: https://www.torierobinson.com/ukraine-piotr-zwolinski-lukasz-sosnowski---Epileptologist Piotr Zwoliński and CEO Łukasz Sosnowski from Neurosphera speak of their desperation for anti-seizure medications in Ukraine. The war has caused a shortage but without a steady supply of these drugs from pharmaceutical companies, many people will have seizures, suffer injury, and in some cases, will die.Contact your pharmaceutical company now to ask how they are helping people with epilepsy in Ukraine.---Follow Torie on:Twitter: https://twitter.com/torierobinson10LinkedIn: https://www.linkedin.com/torierobinsonInstagram: https://www.instagram.com/torierobins... Facebook: https://www.facebook.com/TorieRobinso... Check out the website: https://www.torierobinson.com

Thursday Mar 17, 2022
Thursday Mar 17, 2022
Eleonora Aronica, a professor at the University of Amsterdam, talks about her work in the neuropathology of epilepsy. ---More about Eleonora: https://www.torierobinson.com/epilepsy-sparks-insights/eleonora-aronica---Research involvement: "Epilepsy Surgery: A Patient & Carer Perspective": https://docs.google.com/forms/d/e/1FAIpQLSfuZ5HIamNW2HobboGaVq080MCNwLVY1bLqXfUtLdVtWElQ1Q/viewform---Glossary:There are many terms used in this recording which you can find in the Epilepsy Sparks Glossary: https://www.epilepsysparks.com/glossary---Follow Torie on:Twitter: https://twitter.com/torierobinson10LinkedIn: https://www.linkedin.com/torierobinsonInstagram: https://www.instagram.com/torierobinson10 Facebook: https://www.facebook.com/TorieRobinsonSpeakerCheck out the website: https://www.torierobinson.com

Thursday Mar 10, 2022
Thursday Mar 10, 2022
We talk to three incredible epilepsy clinicians, geneticists, and researchers from the Danish Epilepsy Center (Rikke Steensbjerre Møller, Guido Rubboli, & Elena Gardella) who are working together with a passion to positively impact the lives of people affected by genetic epilepsies. ---5th Dianalund International Conference, 7-8 April 2022, 4220 Korsør, DenmarkRegister: https://www.conferencemanager.dk/dice2022 Contact: genetics@filadelfia.dk---More about the team: https://www.torierobinson.com/epilepsy-sparks-insights/danish-epilepsy-center---Glossary:There are many terms used in this recording which you can find in the Epilepsy Sparks Glossary: https://www.epilepsysparks.com/glossary ---Follow Torie on:Twitter: https://twitter.com/torierobinson10LinkedIn: https://www.linkedin.com/torierobinsonInstagram: https://www.instagram.com/torierobinson10 Facebook: https://www.facebook.com/TorieRobinsonSpeaker Check out the website: https://www.torierobinson.com

Thursday Mar 03, 2022
Thursday Mar 03, 2022
Today we talk to Samuel Terman; an epileptologist and researcher from the University of Michigan, USA, who specialises in helping people affected by seizures and epilepsy. Samuel tells us about his research into adherence to medications, polypharmacy, deprescribing, and the high rate of multiple disabilities amongst those with epilepsy. Samuel’s work focuses on optimising the delivery of medical care for patients with epilepsy, through medication decisions, hospital utilisation and readmissions, and inpatient seizure monitoring quality of care.---Glossary: There are many terms used in this recording which you can find in the Epilepsy Sparks Glossary (useful for clinicians as well as patients/families): here: ww.epilepsysparks.com/glossary ---More about Samuel: www.torierobinson.com/epilepsy-sparks-insights/samuel-terman---Glossary:There are many terms used in this recording which you can find in the Epilepsy Sparks Glossary: https://www.epilepsysparks.com/glossary---Follow Torie on:Twitter: https://twitter.com/torierobinson10LinkedIn: https://www.linkedin.com/torierobinsonInstagram: https://www.instagram.com/torierobinson10Facebook: https://www.facebook.com/TorieRobinsonSpeakerCheck out the website: https://www.torierobinson.com

Thursday Feb 24, 2022
Thursday Feb 24, 2022
Mike Kerr is a globally recognised, award-winning Neuropsychiatrist who talks about his specialist career in improving the lives of people affected by epilepsy - alongside learning disability, and mental health conditions. Mike is the Emeritus Professor of Learning Disability Psychiatry, Department of Psychological Medicine at Cardiff University, and Honorary Professor at the School of Medicine at Swansea University. ---More about Mike: www.torierobinson.com/epilepsy-sparks-insights/mike-kerr---Follow Torie on:- Website: https://www.torierobinson.com- Twitter: https://twitter.com/torierobinson10- LinkedIn: https://www.linkedin.com/torierobinson- Facebook: https://www.facebook.com/TorieRobinsonSpeaker- YouTube: https://www.youtube.com/channel/UCm02kiQ3Jd1PrIyJgC0tYMw

Thursday Feb 17, 2022
Thursday Feb 17, 2022
Wesley Kerr is both a clinical epilepsy fellow at the University of Michigan, US, and a machine-learning statistician. Wesley works to improve the lives of people who experience epileptic and/or functional seizures. Wesley is big on helping patients and populations receive an accurate diagnosis earlier to hopefully have them respond better to treatments(s) and reduce negative impacts on their quality of life. Formerly completing his neurology residency and Ph.D. in biomathematics at UCLA, Wesley shall be next year spending the majority of his time in research. ---More about Wesley: https://www.torierobinson.com/epilepsy-sparks-insights/wesley-kerr---Glossary:There are many terms used in this recording which you can find in the Epilepsy Sparks Glossary: https://www.epilepsysparks.com/glossary ---Follow Torie on:Twitter: https://twitter.com/torierobinson10LinkedIn: https://www.linkedin.com/torierobinsonInstagram: https://www.instagram.com/torierobinson10 Facebook: https://www.facebook.com/TorieRobinsonSpeaker Check out the website: https://www.torierobinson.com