Epilepsy Sparks Insights

Led by Torie Robinson, ”Epilepsy Sparks Insights” is an educational podcast to spark interest in and bridge the gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Follow on Twitter: @TorieRobinson10 & @EpilepsySparks. Visit www.torierobinson.com & www.epilepsysparks.com. **NOT FOR CLINICAL OR PATIENT DECISION MAKING**

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Episodes

2 days ago

Hear of HOW Richard Baines and his team use fruit flies in epilepsy research, the discoveries made, and the next steps for epilepsy research! Also hear more about the incredible Fly Facility at Manchester University! ------------------------------------------ More about Richard: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/richard-baines-01 ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary  ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson  ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com

Thursday Dec 01, 2022

Post-doc research fellow Eden Robertson from UNSW, Australia, speaks of her GenE Compass project results and how to support caregivers of those with a Developmental & Epileptic Encephalopathy. Eden shares what has already been learnt from the project, the benefits of altruism, and working towards health equity through leaning and working with communities.   ------------------------------------------ More about Eden: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/eden-robertson-02 ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary  ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com  ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com

Thursday Nov 24, 2022

Behavioural scientist Eden Robertson from UNSW, Australia, shares with us her work into improving the lives of caregivers of children with a Developmental & Epileptic Encephalopathy, with clear messages: the Developmental & Epileptic Encephalopathies awfully impact caregivers, who must be provided with education and support. This is part one of two with Eden. ------------------------------------------ More about Eden: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/eden-robertson-01 ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary  ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com  ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com

Thursday Nov 17, 2022

Climate change is real. Awfully real. Hear of the real threats posed by climate change to those with epilepsy and what we can do to help make change and minimise risk. With global lead Prof. Sanjay Sisodiya - Consultant Neurologist at UCL Queen Square Institute of Neurology & Neurosurgery, UK.  ------------------------------------------ More about Sanjay: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/sanjay-m-sisodiya  ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary  ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson  ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com

Thursday Nov 10, 2022

Hear how graphene technology can access and record abnormal brain activity where EEG electrodes can't! With epilepsy researcher Rob Wykes: from both UCL Hospital for Neurology & Manchester University!    More about Rob: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/rob-wykes ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------- 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com #epilepsy #robwykes #neuroscience

Thursday Nov 03, 2022

Research Specialist Stefanie Prast-Nielsen soeaks of her clinical study involving fecal samples from a group of children with refractory epilepsy who started the ketogenic diet; investigating their gut microbiota and how it may be related to changes in epileptic seizures. Stefanie also talks about future international collaborations in collections of stool samples for furthering this epilepsy research.This is part 2 of 2. ------------------------------------------ More about Stefanie: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/stefanie-prast-nielsen-02 ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com

Thursday Oct 27, 2022

Hear from Research Specialist & PI Stefanie Prast-Nielsen, from the Centre for Translational Microbiome Research at Karolinska Institutet in Stockholm, Sweden, about her epilepsy research into gut microbiota; explaining to us what they are, how they connect with the brain, and the link between them, our poo/feces, and seizures! This is part 1 of 2. ------------------------------------------ More about Stefanie: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/stefanie-prast-nielsen-01 ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com

Thursday Oct 20, 2022

This week we chat with Usha Kini: a professor in clinical genetics from Oxford University who tells us about her work on the new, exciting epilepsy genetics pilot project called Genseize. For Genseize they are recruiting individuals and families affected by a primary epilepsy who’d like to potentially find out more about their own condition which may lead to improved treatment, but also improve diagnoses and care for other people - around us now, and in the future. ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ 👉🏻 Genseize project: https://www.epilepsysparks.com/research-involvement#genseize ------------------------------------------ 👉🏻 More about Usha: https://www.torierobinson.com/epilepsy-sparks-insights/usha-kini  ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com

Thursday Oct 13, 2022

Adult neurologist, epilepsy specialist, and researcher Heidi Munger Clary specialises in helping people with epilepsy who experience anxiety and depression and who are at risk of suicidality. Heidi tells us about patient risk identification and prevention, access to help, and tools for clinicians and patients. Which are in great demand!! Only watch/listen to this video if it is safe for you to do so - i.e. it is not a trigger for any awful feelings. If you haven’t listened to episode #01 with Heidi (about her work and research into depression, anxiety, and epilepsy) check it out here: https://epilepsysparksinsights.podbean.com/e/helping-epilepsy-patients-with-anxiety-depression-heidi-munger-clary/?token=86b4e31086fa49381490742d6baab231 ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ------------------------------------------ More about Heidi: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/heidi-munga-clary-02 Email: hmungerc@wakehealth.edu ------------------------------------------ Helplines: 👇🏻 https://www.epilepsysparks.com/mental-health ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com

Thursday Oct 06, 2022

Anxiety and depression. Each of these mental illnesses are incredibly common as part of epilepsy. In anticipation of World Mental Health Day (10th October), we talk about anxiety and depression as part of epilepsy - with adult epileptologist Heidi Mungar Clary from the Wake Forest University School of Medicine, in North Carolina, US. Heidi tells us about her cool research into the topics  (presented at the ILAE in Geneva) and how we can improve the lives of people affected by epilepsy, depression, and anxiety. ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com   ------------------------------------------ More about Heidi: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/heidi-munger-clary-01 ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com

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