Epilepsy Sparks Insights

Led by Torie Robinson, ”Epilepsy Sparks Insights” is an educational podcast to spark interest in and bridge the gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Follow on Twitter: @TorieRobinson10 & @EpilepsySparks. Visit www.torierobinson.com & www.epilepsysparks.com. **NOT FOR CLINICAL OR PATIENT DECISION MAKING**

Listen on:

  • Podbean App

Episodes

12 hours ago

It's wild: when clinicians mistake an epilepsy (caused by a brain tumour!) for menopause! Or, when a parent doesn't believe that their daughter could have an epilepsy...! Why aren't organisations and governments promoting epilepsy awareness as well as they do stroke and MS?! Tune in to hear all about it from leading epilepsy specialist: Jacqueline French.
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🔗 Website & more about Jacqueline: 👇🏻
jacqueline-french-epilepsy-menopause
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🔗 Kin - that Irish TV series: 👇🏻
IMDB
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
epilepsysparks.com/glossary
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📲 Join me on social media!
- X: torierobinson10
- LinkedIn: torierobinson
- Instagram: torierobinson10
- Facebook: TorieRobinsonSpeaker
- TikTok: torierobinson10
 
#epilepsy #epilepsyresearch #JacquelineFrench #humanepilepsyproject #EpilepsyStudyConsortium

24 hours ago

Hear about the one-of-a-kind 6th Dianalund International Conference on Epilepsy in May 2024 - with lead genetic clinicians and researchers Elena Gardella, Rikke Møller, and Guido Rubboli.
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🔗 Website & more about Elena, Rikke, and Guido: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/6th-dianalund-international-conference-epilepsy-genetics-denmark-elena-gardella-rikke-moller-guido-rubboli
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
- X: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
 
#epilepsy #epilepsygenetics #monogenic #phenotypes #filadelfia #danishepilepsycenter #DICE

Thursday Apr 11, 2024

5% of a cohort* had at least 1 car accident (and up to 3) before their epilepsy diagnosis! Hear about the global Human Epilepsy Project by Jacqueline French and learn how seizures can present in so many different ways!
*450 people
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🔗 Website & more about Jacqueline: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/jacqueline-french-human-epilepsy-project
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
- X: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
 
#epilepsy #epilepsyresearch #JacquelineFrench #humanepilepsyproject #EpilepsyStudyConsortium

Thursday Apr 04, 2024

Do Autism & Intellectual Disability Come With Epilepsy? Learn of the Epilepsy, Autism and Intellectual Disability “triad” - studied by clinician scientist, epileptologist: Vaishnav Krishnan.
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🔗 Website & more about Vaishnav: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/vaishnav-krishnan-epilepsy-autism-intellectual-disability-triad 
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- X: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
 
 
#epilepsy #neurology #autism #intellectualdisability #vaishnavkrishnan

Thursday Mar 28, 2024

Learn of the huge reduction in seizures amongst adults with the epilepsy Lennox-Gastaut Syndrome - as the result of DBS! With Linda Dalic.
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🔗 Website & more about Linda: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/linda-dalic-stimulating-brain-reduce-seizures-neuromodulation
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
- X: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
#epilepsy #LindaDalic #LGS #DBS #Neuro
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Tuesday Mar 26, 2024

Hear about the origins of Purple Day, its purpose, the positivity and how to make a difference! With founder: Cassidy Megan!! We talk about how Purple Day was founded, Cassidy's personal epilepsy diagnosis, school, stigma, the diversities of the epilepsies, SUDEP, varying cultural experiences, media portrayals, credible sources of information, and brilliant clinicians! 
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🔗 Website & more about Cassidy: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/cassidy-megan-purple-day-openness
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10
 
#purpleday #epilepsy #cassidymegan

Thursday Mar 21, 2024

Brain, Skull, And Neck Implants For Epilepsy?! What's the epilepsy treatment called VNS? Or DBS? Or RNS?! Learn about these cool neuromodulation treatments that can help to prevent and/or control epileptic seizures (!) with star epileptologist Anna Bochenek.
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🔗 Website & more about Anna: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/anna-bochenek-neuromodulation-vns-dbs-rns
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- X: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
 
#epilepsy #neuromodulation #AnnaBochenek

Thursday Mar 14, 2024

Brain tumours vary greatly and 30% of them cause an epilepsy to develop - hence the name Brain Tumour Related Epilepsy. Hear more for Brain Tumour Awareness Month from cancer neuroscientist: Kate Connor.
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🔗 Website & more about Kate: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/kate-connor-epilepsy-brain-tumours-awareness-month
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10
 
#epilepsy #braintumour #braintumor #braintumourrelatedepilepsy #KateConnor

Thursday Mar 07, 2024

Surprising and exciting rare epilepsy (STXBP1) research discoveries that have led to the enhancement of excitatory synapses as a proposed treatment - by Jean-François Perrier of the University of Copenhagen, Denmark.
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🔗 Website & more about Jean-François: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/jean-francois-perrier-STXBP1-excitatory-inhibitory-synapses
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- X: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
#epilepsy #STXBP1 #Jean-FrançoisPerrier #genetics

Thursday Feb 29, 2024

Could we accurately predict epileptic seizures using AI? How accurate do predictions need to be? How cool to use do devices need to be?! Could seizure forecasting reduce injuries, decrease mortality, and improve people’s quality of life? Hear all about it from neurologist: Daniel Goldenholz.
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🔗 Website & more about Daniel: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-seizure-forecasting-artificial-intelligence
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10
 
#epilepsy #medtech #danielgoldenholz  

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