Epilepsy Sparks Insights

Genetic Epilepsy - Lafora Disease - Challenges & Hopes - Berge Minassian

Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the research taking place to hopefully improve and save the lives of the children affected, with Berge Minassian.
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🔗 Website & more about Berge: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/berge-minassian-lafora-disease 
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Exciting Research Into The Ultra-Rare Epilepsy: Lafora Disease - Jordi Duran

Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the exciting research taking place to try and improve and save the lives of the children affected. With global lead researcher Jordi Duran.
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🔗 Website & more about Jordi: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/jordi-duran-lafora-disease 
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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Ultra-Rare Epilepsy: Lafora Disease - José Serratosa

Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the research taking place to hopefully improve and save the lives of the children affected. With lead epileptologist and researcher José Serratosa of the Hospital Universitario Fundación Jiménez Díaz, Madrid, Spain. This is the first of 3 of our episodes re the ultra-rare genetic epilepsy: Lafora Disease.
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🔗 Website & more about José: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/jose-serratosa-lafora-disease 
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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Status Epilepticus: Complexities & Outcomes - Christoph Beier

Hear of research into complex refractory & super refractory status epilepticus; treatments, outcomes, & how to improve each - with Christoph Beier.
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🔗 Website & more about Christoph Beier: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/christoph-beier-status-epilepticus-complexities-outcomes
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Seizure Propagation: Identifying How Seizures Spread - Christina Maher

Learn of studies on the accurate prediction of seizure propagation and how identifying this for each person with an epilepsy can assist in more effective treatment - e.g. in presurgical workup, and more - all with biomedical engineer and neuroscientist Christina Maher from the University of Sydney.
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🔗 Website & more about Christina Maher: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/christina-maher-seizure-propagation-focal-bilateral-tonic-clonic
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Focal Epilepsy Onset Later In Life - With Origins In Childhood - Jacob Pellinen

Signs of focal epilepsy before the seizures start: hear all about it from epileptologist Jacob Pellinen, who shares with us his research and results proving that people can experience things like depression or learning difficulties at school or work before seizure onset.
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🔗 Website & more about Jacob: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/jacob-pellinen-focal-epilepsy-onset-later-in-life-origins-childhood
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Epilepsy - Part Of An Autoimmune Disorder? - Lucas Gabriel Orellana

Did you know that seizures and epilepsy can be part of an autoimmune disorder? E.g. Lupus, Coeliac disease, or Crohn's disease? Hear all about it from neurologist & epilepsy specialist Lucas Gabriel Orellana.
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🔗 Website & more about Lucas: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/lucas-gabriel-orellana-epilepsy-systemic-autoimmune-disorders
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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Epilepsy Stigma - Eradicating It In Latin America - Gabriela Reyes Valenzuela

Stigma is to be challenged through education. Gabriela Reyes Valenzuela, a peadiatric epileptologist from Argentina explains her invaluable training regarding epilepsy provided to influential community leaders.
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🔗 Website & more about Gabriela: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/Gabriela-Reyes-Valenzuela-epilepsy-stigma-eradicating-latin-america
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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How To Improve Epilepsy Appointments & Improve Quality of Life - Morten Ingvar Lossius

Epileptologist Morten Ingvar Lossius provides recommendations for people with an epilepsy and their clinicians when it comes to appointments, patient sex lives, easing drug side effects, precision medicine, and how crucial regular appointments are. This is part 2 of 2. 
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🔗 Website & more about Morten: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/morten-lossius-improve-epilepsy-neurology-appointments-improve-quality-of-life
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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Psychosocial Impacts Of Epilepsy In Adolescents & Adults - Morten Ingvar Lossius

Epileptologist Morten Ingvar Lossius shares his crucial work in identifying the psychosocial challenges of individuals with an epilepsy and how best to improve their quality of life. Hear about the Beyond Seizures team at EpiCARE, Juvenile Myoclonic Epilepsy symptoms (other than seizures), and key discoveries made regarding risk. This is part 1 of 2.
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🔗 Website & more about Morten: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/morten-lossius-seizures-are-one-symptom-of-epilepsy
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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