Epilepsy Sparks Insights

Genetic Testing in Epilepsy Isn’t Definitive - Here's Why - Dr. Christian Bosselmann

Who should receive genetic testing in epilepsy, and how should results really be interpreted? Epileptologist and scientist Dr. Christian Bosselmann explores genome sequencing, diagnostic yield, variants of uncertain significance, and why results are rarely black and white. The discussion highlights how quickly things are changing in epilepsy genetics and how re-analysis and improved interpretation can meaningfully influence clinical decision-making. This episode is sponsored by EASEE® by Precisis GmbH, who had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en
 
🔗 More about episode (inc. transcription) 👇🏻
https://www.epilepsysparks.com/epilepsy-sparks-insights/genetic-testing-variant-interpretation
 
🌐 More about Christian 👇🏻
https://www.epilepsysparks.com/guests/christian-bosselmann
 
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AI in Health Care - What the Evidence Shows So Far - Charlotte Blease, PhD

Who is already using generative AI in health care, and what does the evidence actually show? Researcher Charlotte Blease, PhD, examines the positives, patient and clinician uptake, emerging risks, and where major gaps in training, policy, and research remain. The discussion explores mental health use, long-term conditions, empathy, and why regulation is struggling to keep pace with real-world practice.
This episode is sponsored by EASEE® by Precisis and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en
 
🔗 More about episode (inc. transcription) 👇🏻https://www.epilepsysparks.com/epilepsy-sparks-insights/ai-in-healthcare-evidence 
 
🌐 More about Charlotte 👇🏻https://www.epilepsysparks.com/guests/charlotte-blease 
 
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Accelerated Brain Ageing and Neurodegeneration in Epilepsy - Dr. Marian Galovic

Accelerated brain ageing is a key feature of epilepsy that cannot be explained by seizures alone. Drawing on longitudinal imaging and biomarker research, Dr. Marian Galovic discusses neurodegeneration beyond seizure activity and the clinical importance of early intervention.
This episode is sponsored by EASEE® by Precisis and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en
 
🔗 More about episode (inc. transcription) 👇🏻https://www.epilepsysparks.com/epilepsy-sparks-insights/neurodegeneration-brain-ageing
 
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🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider!
 
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When Seizures Aren’t the Only Problem in Childhood Epilepsies - Prof. Kette Valente

Seizures are often the focus in childhood epilepsies, but they certainly are not the only symptoms affecting outcomes and quality of life. This episode with Prof. Kette Valente looks at the non-seizure features that matter personally and clinically, why they can be missed, and why identifying them early can change care and long-term impact.
This episode is sponsored by EASEE® by Precisis and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en
🔗 More about episode (inc. transcription) 👇🏻https://www.epilepsysparks.com/epilepsy-sparks-insights//seizures-not-only-problem
🌐 More about Kette 👇🏻https://www.epilepsysparks.com/guests/kette-valente
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Implantable EEG and Long-Term Monitoring - Prof. Norman Delanty

Routine EEG provides a brief snapshot of brain activity and may not capture seizures or epileptiform activity. In this conversation, neurologist Prof. Norman Delanty explains how extended and implantable EEG monitoring can improve assessment of seizure burden, support treatment decisions, and clarify diagnosis and management when short recordings are insufficient.
This episode is sponsored by EASEE® by Precisis and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en 
 
🔗 More about episode (inc. transcription) 👇🏻
https://www.epilepsysparks.com/epilepsy-sparks-insights/long-term-eeg-monitoring
 
🌐 More about Norman 👇🏻
https://www.epilepsysparks.com/guests/norman-delanty 
 
📃 Related paper 👇🏻
"Unilateral ultra long-term subcutaneous EEG monitoring in drug-refractory idiopathic generalized epilepsy" https://onlinelibrary.wiley.com/doi/10.1111/epi.18644
 
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Obesity in Epilepsy - Practical Clinical Approaches - Dr. Ching Soong Khoo

In part two of this conversation, Dr. Ching Soong Khoo discusses practical approaches to managing obesity in epilepsy, including exercise safety, diet, and multidisciplinary care. The episode highlights why weight and physical health are often overlooked in routine practice, and how simple clinical changes can support better quality of life and overall outcomes in people with an epilepsy.
 
🔗 More about episode (inc. transcription) 👇🏻
https://www.epilepsysparks.com/epilepsy-sparks-insights/obesity-quality-of-life 
 
🌐 More about Ching Soong 👇🏻
https://www.epilepsysparks.com/guests/ching-soong-khoo
 
📜 Related publications
- “High prevalence of obesity and reduced physical activity among people with epilepsy: A single-centre cross-sectional study” https://www.sciencedirect.com/science/article/pii/S1525505025004755
- “Epilepsy, seizures, physical exercise, and sports: A report from the ILAE Task Force on Sports and Epilepsy” https://pubmed.ncbi.nlm.nih.gov/26662920
- “Stop stigma, start exercising: How clinicians can encourage people with epilepsy to engage in physical activity” https://www.ilae.org/journals/epigraph/epigraph-vol-25-issue-1-winter-2023/stop-stigma-start-exercising-how-clinicians-can-encourage-people-with-epilepsy-to-engage-in-physical-activity
 
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🌐 More Epilepsy Sparks Insights 👇🏻
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🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider!
 
🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
 
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Obesity in Epilepsy - An Overlooked Problem - Dr. Ching Soong Khoo

Why is obesity so common in people with epilepsy - and why is it often overlooked in clinical care? Dr. Ching Soong Khoo shares new research findings on obesity prevalence, physical activity, and mobility, and discusses how fear, diet, and behaviour intersect with epilepsy management. The episode highlights why addressing weight alongside seizure control matters for long-term health and quality of life.
 
🔗 More about episode (inc. transcription) 👇🏻
https://www.epilepsysparks.com/epilepsy-sparks-insights/obesity-health-fitness 
 
🌐 More about Ching Soong 👇🏻
https://www.epilepsysparks.com/guests/ching-soong-khoo
 
📜 Related publications
- “High prevalence of obesity and reduced physical activity among people with epilepsy: A single-centre cross-sectional study” https://www.sciencedirect.com/science/article/pii/S1525505025004755
- “Epilepsy, seizures, physical exercise, and sports: A report from the ILAE Task Force on Sports and Epilepsy” https://pubmed.ncbi.nlm.nih.gov/26662920
- “Stop stigma, start exercising: How clinicians can encourage people with epilepsy to engage in physical activity” https://www.ilae.org/journals/epigraph/epigraph-vol-25-issue-1-winter-2023/stop-stigma-start-exercising-how-clinicians-can-encourage-people-with-epilepsy-to-engage-in-physical-activity
 
👕 Join the Epilepsy Sparks community with our merch 👇🏻
https://epilepsy-sparks.creator-spring.com
 
🌐 More Epilepsy Sparks Insights 👇🏻
https://www.epilepsysparks.com/epilepsy-sparks-insights
 
🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider!
 
🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
 
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What Life Is Really Like for Families Affected by Dravet Syndrome - Rébecca Hubert

Why Clinicians Must Listen to Families Living With Dravet Syndrome - Prof. Rima Nabbout

Understanding the New Focal Consciousness Classifier - Prof. Sándor Beniczky

The updated seizure terminology aims to make life easier for everyone both affected by focal seizures and those involved in epilepsy care. In this episode, Prof. Sándor Beniczky breaks down why "consciousness" is now the key term used to describe focal seizures, and how it imporves clarity, consistency, and global usability - benefiting those with with an epilepsy, carers, GPs/physicians, nurses, and specialists alike.
We discuss…
why focal "awareness” has been retired
what "consciousness" means during a seizure
the difference between responsiveness and recall
why the number of seizure types has been reduced
how the update strengthens communication at all levels of care
what these changes mean for real clinical practise
how shared language supports better decision-making
🔗 More about episode (inc. transcription) 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/focal-consciousness-seizures-explained
 
🌐 More about Sándor 👇🏻 https://www.torierobinson.com/guests/sandor-beniczky
 
📖 Paper spoken of 👇🏻 https://onlinelibrary.wiley.com/doi/10.1111/epi.18338
 
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🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights
 
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🔗 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
 
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