Epilepsy Sparks Insights

Cenobamate: Benefits & Risks - Ricardo Morcos

As well as preventing up to 100% of seizures in 20% of those with refractory focal epilepsy, Cenobamate may also (indirectly), positively impact mental health, cognitive function and reduce seizure propagation. Ricardo Morcos shares information on the titration of Cenobamate, how it is not suitable during pregnancy, and the importance of a 1:1 clinician-patient relationship. This is part 2 of 2.
Please note that this is not an endorsement of any particular anti-seizure medication (Cenobamate or any of the others mentioned) and any questions or ideas from a patient or carer must be brought up with one’s neurologist/epileptologist.
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Spanish consensus on the management of concomitant anti-seizure medications when using Cenobamate in adults with drug-resistant focal seizures 👇
https://www.researchgate.net/publication/379572148_Spanish_consensus_on_the_management_of_concomitant_antiseizure_medications_when_using_cenobamate_in_adults_with_drug-resistant_focal_seizures 
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🔗 Website & more about Ricardo 👇
https://www.torierobinson.com/epilepsy-sparks-insights/ricardo-mocos-starting-cenobamate-cognition-pregnancy 
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇 https://www.epilepsysparks.com/glossary 
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Cenobamate: A Game Changer For Epilepsy? - Ricardo Mocos

As well as preventing up to 100% of seizures in 20% of those with refractory focal epilepsy, Cenobamate may also (indirectly), positively impact mental health, cognitive function and reduce seizure propagation. Ricardo Morcos shares information on the titration of Cenobamate, pregnancy, and the importance of a 1:1 clinician-patient relationship. This is part 2 of 2.
Please note that this is not an endorsement of any particular anti-seizure medication (Cenobamate or any of the others mentioned) and any questions or ideas from a patient or carer must be brought up with one’s neurologist/epileptologist.
------------------------------------------
Spanish consensus on the management of concomitant anti-seizure medications when using Cenobamate in adults with drug-resistant focal seizures
https://www.researchgate.net/publication/379572148_Spanish_consensus_on_the_management_of_concomitant_antiseizure_medications_when_using_cenobamate_in_adults_with_drug-resistant_focal_seizures 
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🔗 Website & more about Ricardo 👇
https://www.torierobinson.com/epilepsy-sparks-insights/ricardo-mocos-cenobamate-game-changer-for-epilepsy 
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇 https://www.epilepsysparks.com/glossary 
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#cenobamate #focalepilepsy #partialseizures #epilepsy #RicardoMocos

World Brain Day 2024: Brain Health & Prevention - Tissa Wijeratne

For the 11th World Brain Day, hear from co-chair and lead neurologist Tissa Wijeratne, who explains how so many of the brain disorders in nearly 4 billion people can be prevented, and how you can help this happen! Links to the free World Brain Day webinar, and more, are below.
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🎧 Listen to ESI on Spotify!👇
https://open.spotify.com/show/14rwL06qUowezZQGwpR7GW?si=dE4AEAsrQhqbeDc8dKM-dQ
Also on Apple Podcasts or anywhere else you listen!
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World Brain Day 👇
https://wfneurology.org/activities/news-events/wfn-news/2024-05-07-wfn-wbd
 
World Brain Day webinar 👇
https://us02web.zoom.us/webinar/register/WN_ayYclSOLRSKwriPFg7S5bg#/registration 
 
World Brain Day content toolkit 👇
https://drive.google.com/drive/folders/1TD_CyerWAa_x65614G6UmWJ8WUBocGNz 
 
World Health Organization Intersectoral Global Action Plan 👇
https://www.who.int/publications/i/item/9789240096356 
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🔗 Website & more about Tissa 👇
https://www.torierobinson.com/epilepsy-sparks-insights/tissa-wijeratne-world-brain-day-2024 
 
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 
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#WorldBrainDay #WBD2024 #BrainHealthandPrevention #TissaWijeratne

Epilepsy Surgery, Neuroplasticity, & Memory - Jon Kleen

People forget to bring up memory issues with their neurologist…because of their memory issues! Discover the potentials and limitations of neurosurgery and neuroplasticity with epileptologist Jon Kleen from UCSF medical Center. 
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🔗 Website & more about Jon: 👇
https://www.torierobinson.com/epilepsy-sparks-insights/jon-kleen-epilepsy-surgery-neuroplasticity-memory-cognition
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇 https://www.epilepsysparks.com/glossary 
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#cognition #memory #epilepsy #jonkleen

Cognitive Impairments In Epilepsy - Jon Kleen

Learn all about how people can have memory and other cognitive struggles as part of their epilepsy - in part 1 of 2 with epileptologist Jon Kleen from the UCSF Medical Center, USA! Jon speaks about his career focus, types of cognitive impairments, impacts on quality of life, and more.
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🔗 Website & more about Jon: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/jon-kleen-cognitive-impairments-epilepsy-research
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 
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#cognition #memory #epilepsy #jonkleen

Our Need To Manage Stress - Neil Shah

Stress and anxiety levels are incredibly high amongst the population of those with an epilepsy and are commonly seizure triggers. Neil Shah of the Stress Management Society speaks of stress in today's society, the importance of recognising and addressing it, removing the guilt, shame, and stigma associated with it, and the power we have to limit it.
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🔗 Website & more about Neil: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/neil-shah-managing-stress-anxiety-with-epilepsy
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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#epilepsy #stress #anxiety #sleep #neilshah

Neurologists Recognising & Addressing Symptoms Other Than Seizures - Claude Steriade

Learn of when an Autoimmune-Associated Epilepsy can onset, potential causes, and the needs of people affected - other than seizure control! All in part 2 of 2 with epileptologist Claude Steriade from​⁠ NYU Langone Health  Epilepsy Center.
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🔗 Website & more about Claude: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/claude-steriade-other-symptoms-of-autoimmune-associated-epilepsy
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 
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#autoimmune #autoimmuneepilepsy #neurology #immunology 
 

Understanding & Treating Autoimmune-Associated Epilepsy - Claude Steriade

Hear about Autoimmune-Associated Epilepsy and the intersection between epilepsy and immunology - in part 1 of 2 with epileptologist Claude Steriade from NYU Langone Health Epilepsy Center! Claude explains the causes, mechanisms, and impacts of Autoimmune-Associated Epilepsy upon people's lives, plus, how crucial early diagnoses and intervention are.
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🔗 Transcription & more about Claude: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/claude-steriade-autoimmune-associated-epilepsy-immunology
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
www.epilepsysparks.com/glossary
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#autoimmune #autoimmuneepilepsy #neurology #immunology

Huge Advances In EEG Monitoring & Analysis - Mark Cook

Mark Cook and Torie discuss the significant improvements in epilepsy treatments over the past few decades - thanks to technologies like MRI and genetics. Mark also explores the issue of overreporting and underreporting of seizures by patients and the potential of ambulatory EEG monitoring and big data analysis to provide a more accurate understanding of seizure activity which can lead to both improved treatments and improving peoples’ quality of life.
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📖 Transcript & more on Mark: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/mark-cook-huge-advances-in-eeg-monitoring-analysis
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
www.epilepsysparks.com/glossary
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#epilepsy #medtech #EEG #ambulatoryEEG

Exploring The Links Between Sleep & Epilepsy: CASTLE - Deb Pal & Paul Gringras

Deb Pal and Paul Gringras discuss their research on the links between sleep and seizures in epilepsy; sharing their work on the CASTLE project, which aims to improve sleep and Quality of Life for children, young people, and families affected. They discuss both their app called COSI - which provides evidence-based sleep interventions for parents, and the upcoming CASTLE conference, where they shall disseminate  their research findings and discuss the importance of personalised approaches to sleep management in epilepsy.
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Interested in attending the conference? 🎫
Contact us via deb.pal@kcl.ac.uk or via our X accounts @palneurolab, @TorieRobinson10, or @EpilepsySparks.
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🔗 Website & more about Deb and Paul: 👇🏻
www.torierobinson.com/epilepsy-sparks-insights/deb-pal-paul-gringras-exploring-the-links-between-sleep-epilepsy-castle
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
www.epilepsysparks.com/glossary
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#sleep #epilepsy #epilepsyresearch #CASTLE #COZY