Epilepsy Sparks Insights

Sparking interest and understanding in the epilepsies whilst bridging the communication gap between epilepsy patients, clinicians, scientists, geneticists โ€“ and the world. Hosted by Torie Robinson. **NOT FOR CLINICAL OR PATIENT DECISION-MAKING* Visit www.torierobinson.com & www.epilepsysparks.com.

Listen on:

  • Podbean App

Episodes

Thursday Dec 07, 2023

Exciting neuroimaging techniques are getting out there to help more and more people become seizure-free. Hear more about the latest from clinical support scientist Ben Brinkmann.
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๐Ÿ”— Website & more about Ben: ๐Ÿ‘‡๐Ÿป
https://www.torierobinson.com/epilepsy-sparks-insights/ben-brinkmann-latest-ways-scan-brain-mri-eeg-mag-magnetoencephalography-7tesla-mri
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Donโ€™t understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐Ÿ‘‡๐Ÿป https://www.epilepsysparks.com/glossary
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๐Ÿ“ฒ Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- X: https://twitter.com/torierobinson10
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
ย 
#epilepsy #BenBrinkmann #MEG #EEG #MRI

Thursday Nov 30, 2023

Magnetoencephalographies - or MEGs - are brain scans with a very high sensitivity and are a distinct complement to EEG and MRI scans in preparation for epilepsy surgery. Hear all about them now from the expert in biosignal analysis: Stefan Rampp.
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๐Ÿ”— Website & more about Stefan: ๐Ÿ‘‡๐Ÿป
https://www.torierobinson.com/epilepsy-sparks-insights/stefan-rampp-MRI-magnetoencephalography-benefits-epilepsy-neurosurgery
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Donโ€™t understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐Ÿ‘‡๐Ÿป https://www.epilepsysparks.com/glossary
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๐Ÿ“ฒ Join me on social media!
- X: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10

Thursday Nov 23, 2023

Hear how somatic gene mutations can lead to an epilepsy and how this is being researched by lead clinician scientist of the University of Calgary: Karl Martin Klein.
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๐Ÿ”— Website & more about Karl Martin: ๐Ÿ‘‡๐Ÿป
https://www.torierobinson.com/epilepsy-sparks-insights/karl-martin-klein-epilepsy-via-somatic-gene-mutations
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Donโ€™t understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐Ÿ‘‡๐Ÿป https://www.epilepsysparks.com/glossary
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๐Ÿ“ฒ Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- X/Twitter: https://twitter.com/torierobinson10

Monday Nov 20, 2023

Hear how the conflict in Palestine is impacting the thousands people with epilepsy in Palestine - but how support from around the world is making a difference - with our return-guest, epileptologist Omar Danoun ุฏ. ุนู…ุฑ ุฏู†ูˆู†..
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๐Ÿ”— Website & more about Omar: ๐Ÿ‘‡๐Ÿป
https://www.torierobinson.com/epilepsy-sparks-insights/omar-danoun-epilepsy-israel-palestine-gaza-crisis
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Donโ€™t understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐Ÿ‘‡๐Ÿป https://www.epilepsysparks.com/glossary
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๐Ÿ“ฒ Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- X/Twitter: https://twitter.com/torierobinson10

Thursday Nov 16, 2023

Epilepsy Specialist Pharmacist Trudy Thomas explains the incredible value of an Epilepsy Specialist Pharmacist, managing โ€œA wonky stoolโ€, and how and why other non-specialist pharmacists should learn more about the epilepsies.
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๐Ÿ”— Website & more about Trudy: ๐Ÿ‘‡๐Ÿป
https://www.torierobinson.com/epilepsy-sparks-insights/trudy-thomas-epilepsy-specialist-pharmacists-value
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Donโ€™t understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐Ÿ‘‡๐Ÿป https://www.epilepsysparks.com/glossary
------------------------------------------
๐Ÿ“ฒ Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10

Thursday Nov 09, 2023

Raising awareness of epilepsy amongst everyone for Epilepsy Awareness Month - through events and just chatting! With epileptologist Meriem Bensalem-Owen.
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๐Ÿ”— Website & more about Meriem: ๐Ÿ‘‡๐Ÿป
https://www.torierobinson.com/epilepsy-sparks-insights/meriem-bensalem-owen-epilepsy-awareness-month-being-involved
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Chapters ๐Ÿ“–
00:00 Meet Meriem
02:27 Why focus on the epilepsies?
03:54 Promoting epilepsy awareness through bourbon!
05:51 Activities for Epilepsy Awareness Month - inc the Mayor of Lexington!
08:37 Help raise awareness during Epilepsy Awareness Month - through the gymโ€ฆ
10:09 Educating researchers and scientists about epilepsy!
12:17 Reassuring people with a new diagnosis of epilepsy
13:24 Telling PWE that heaps of people behind the scene are working for them
15:01 Thank you
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Donโ€™t understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐Ÿ‘‡๐Ÿป https://www.epilepsysparks.com/glossary
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๐Ÿ“ฒ Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10

Thursday Nov 02, 2023

Learn how funds are generated for the care of children with an epilepsy, fun times, and how itโ€™s crucial to work with the whole family - with peadiatric neurologist and secretary of ILAE YES, Eugenia Roza, Romania.
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๐Ÿ”— Website & more about Eugenia: ๐Ÿ‘‡๐Ÿป
https://www.torierobinson.com/epilepsy-sparks-insights/eugenia-roza-epilepsy-fundraising-for-care-romania
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Donโ€™t understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐Ÿ‘‡๐Ÿป https://www.epilepsysparks.com/glossary
------------------------------------------
๐Ÿ“ฒ Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10
ย 
#epilepsy #EugeniaRoza #Seizures #peadiatricepilepsy

Thursday Oct 26, 2023

Biochemist Matt Gentry shares with us his extensive research into the ultra-rare epilepsy Lafora Disease, his motivation from working with families, the brilliant work of the Lafora Disease charity Chelseaโ€™s Hope, and support from both the NIH and the Chan Zuckerberg Initiative.
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๐Ÿ”— Website & more about Matthew Gentry: ๐Ÿ‘‡๐Ÿป
https://www.torierobinson.com/epilepsy-sparks-insights/matthew-gentry-biochemistry-epilepsy-research-lafora-diseaseย 
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Donโ€™t understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐Ÿ‘‡๐Ÿป https://www.epilepsysparks.com/glossary
------------------------------------------
๐Ÿ“ฒ Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10

Thursday Oct 19, 2023

Learn about SUDEP (Sudden Unexpected Death in Epilepsy), SUDEP Action Day (18th Oct 2023), minimising risks, and saving lives! With Sammy Ashby of SUDEP Action.
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๐Ÿ”— Website & more about Sammy Ashby: ๐Ÿ‘‡๐Ÿป
https://www.torierobinson.com/epilepsy-sparks-insights/sammy-ashby-saving-lives-sudep-action-day
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Donโ€™t understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐Ÿ‘‡๐Ÿป https://www.epilepsysparks.com/glossary
------------------------------------------
๐Ÿ“ฒ Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10

Thursday Oct 12, 2023

Exposure to nature: plants, water noises, and more, are proven to be of distinct benefit to human health. Epileptologist, Elisabeth Doran from St. Jamesโ€™s Hospital in Ireland explains the benefits of exposure to nature for those with an epilepsy.
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๐Ÿ”— Website & more about Elisabeth Doran: ๐Ÿ‘‡๐Ÿป
https://www.torierobinson.com/epilepsy-sparks-insights/elisabeth-doran-nature-treatment-for-epilepsy
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Donโ€™t understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐Ÿ‘‡๐Ÿป https://www.epilepsysparks.com/glossary
------------------------------------------
๐Ÿ“ฒ Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10

ยฉ 2022 Epilepsy Sparks Insights

Version: 20241125