Epilepsy Sparks Insights
Led by Torie Robinson, ”Epilepsy Sparks Insights” is an educational podcast to spark interest in and bridge the gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Follow on Twitter: @TorieRobinson10 & @EpilepsySparks. Visit www.torierobinson.com & www.epilepsysparks.com. **NOT FOR CLINICAL OR PATIENT DECISION MAKING**
Episodes
![Biochemistry In Epilepsy Research - Lafora Disease - Matt Gentry](https://pbcdn1.podbean.com/imglogo/ep-logo/pbblog14777734/Matthew_Sq_content_Podcast_instaacs62_300x300.jpeg)
Thursday Oct 26, 2023
Thursday Oct 26, 2023
Biochemist Matt Gentry shares with us his extensive research into the ultra-rare epilepsy Lafora Disease, his motivation from working with families, the brilliant work of the Lafora Disease charity Chelsea’s Hope, and support from both the NIH and the Chan Zuckerberg Initiative.
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🔗 Website & more about Matthew Gentry: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/matthew-gentry-biochemistry-epilepsy-research-lafora-disease
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10
![Saving Lives: SUDEP Action Day - Sammy Ashby](https://pbcdn1.podbean.com/imglogo/ep-logo/pbblog14777734/Sammy_Sq_content_Podcast_insta7j418_300x300.jpg)
Thursday Oct 19, 2023
Thursday Oct 19, 2023
Learn about SUDEP (Sudden Unexpected Death in Epilepsy), SUDEP Action Day (18th Oct 2023), minimising risks, and saving lives! With Sammy Ashby of SUDEP Action.
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🔗 Website & more about Sammy Ashby: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/sammy-ashby-saving-lives-sudep-action-day
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10
![Nature: A “Treatment” For Epilepsy? - Elisabeth Doran](https://pbcdn1.podbean.com/imglogo/ep-logo/pbblog14777734/Sq_content_Podcast_insta9m0oj_300x300.jpg)
Thursday Oct 12, 2023
Thursday Oct 12, 2023
Exposure to nature: plants, water noises, and more, are proven to be of distinct benefit to human health. Epileptologist, Elisabeth Doran from St. James’s Hospital in Ireland explains the benefits of exposure to nature for those with an epilepsy.
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🔗 Website & more about Elisabeth Doran: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/elisabeth-doran-nature-treatment-for-epilepsy
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10
![Genetic Epilepsy - Lafora Disease - Challenges & Hopes - Berge Minassian](https://pbcdn1.podbean.com/imglogo/ep-logo/pbblog14777734/Podcast_insta_3_7uwvf_300x300.jpg)
Thursday Oct 05, 2023
Thursday Oct 05, 2023
Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the research taking place to hopefully improve and save the lives of the children affected, with Berge Minassian.
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🔗 Website & more about Berge: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/berge-minassian-lafora-disease
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10
![Exciting Research Into The Ultra-Rare Epilepsy: Lafora Disease - Jordi Duran](https://pbcdn1.podbean.com/imglogo/ep-logo/pbblog14777734/Podcast_insta7sej7_300x300.jpg)
Tuesday Oct 03, 2023
Tuesday Oct 03, 2023
Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the exciting research taking place to try and improve and save the lives of the children affected. With global lead researcher Jordi Duran.
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🔗 Website & more about Jordi: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/jordi-duran-lafora-disease
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10
![Ultra-Rare Epilepsy: Lafora Disease - José Serratosa](https://pbcdn1.podbean.com/imglogo/ep-logo/pbblog14777734/Podcast_insta800h4_300x300.jpg)
Sunday Oct 01, 2023
Sunday Oct 01, 2023
Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the research taking place to hopefully improve and save the lives of the children affected. With lead epileptologist and researcher José Serratosa of the Hospital Universitario Fundación Jiménez Díaz, Madrid, Spain. This is the first of 3 of our episodes re the ultra-rare genetic epilepsy: Lafora Disease.
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🔗 Website & more about José: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/jose-serratosa-lafora-disease
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10
![Status Epilepticus: Complexities & Outcomes - Christoph Beier](https://pbcdn1.podbean.com/imglogo/ep-logo/pbblog14777734/Sq_content_Podcast_insta_1_abm64_300x300.jpg)
Thursday Sep 28, 2023
Thursday Sep 28, 2023
Hear of research into complex refractory & super refractory status epilepticus; treatments, outcomes, & how to improve each - with Christoph Beier.
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🔗 Website & more about Christoph Beier: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/christoph-beier-status-epilepticus-complexities-outcomes
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
![Seizure Propagation: Identifying How Seizures Spread - Christina Maher](https://pbcdn1.podbean.com/imglogo/ep-logo/pbblog14777734/Podcast_insta_cover75zac_300x300.jpg)
Thursday Sep 21, 2023
Thursday Sep 21, 2023
Learn of studies on the accurate prediction of seizure propagation and how identifying this for each person with an epilepsy can assist in more effective treatment - e.g. in presurgical workup, and more - all with biomedical engineer and neuroscientist Christina Maher from the University of Sydney.
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🔗 Website & more about Christina Maher: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/christina-maher-seizure-propagation-focal-bilateral-tonic-clonic
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
![Focal Epilepsy Onset Later In Life - With Origins In Childhood - Jacob Pellinen](https://pbcdn1.podbean.com/imglogo/ep-logo/pbblog14777734/Content_Podcast_insta90lq0_300x300.jpeg)
Thursday Sep 14, 2023
Thursday Sep 14, 2023
Signs of focal epilepsy before the seizures start: hear all about it from epileptologist Jacob Pellinen, who shares with us his research and results proving that people can experience things like depression or learning difficulties at school or work before seizure onset.
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🔗 Website & more about Jacob: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/jacob-pellinen-focal-epilepsy-onset-later-in-life-origins-childhood
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Twitter: https://twitter.com/torierobinson10
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
![Epilepsy - Part Of An Autoimmune Disorder? - Lucas Gabriel Orellana](https://pbcdn1.podbean.com/imglogo/ep-logo/pbblog14777734/IMG_2201_300x300.jpeg)
Thursday Sep 07, 2023
Thursday Sep 07, 2023
Did you know that seizures and epilepsy can be part of an autoimmune disorder? E.g. Lupus, Coeliac disease, or Crohn's disease? Hear all about it from neurologist & epilepsy specialist Lucas Gabriel Orellana.
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🔗 Website & more about Lucas: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/lucas-gabriel-orellana-epilepsy-systemic-autoimmune-disorders
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
----------------------------------------
📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10