Epilepsy Sparks Insights

Epilepsy: The Israel-Palestine Crisis - Omar Danoun

Hear how the conflict in Palestine is impacting the thousands people with epilepsy in Palestine - but how support from around the world is making a difference - with our return-guest, epileptologist Omar Danoun د. عمر دنون..
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🔗 Website & more about Omar: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/omar-danoun-epilepsy-israel-palestine-gaza-crisis
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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Epilepsy Specialist Pharmacists: The Value - Trudy Thomas

Epilepsy Specialist Pharmacist Trudy Thomas explains the incredible value of an Epilepsy Specialist Pharmacist, managing “A wonky stool”, and how and why other non-specialist pharmacists should learn more about the epilepsies.
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🔗 Website & more about Trudy: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/trudy-thomas-epilepsy-specialist-pharmacists-value
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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Epilepsy Awareness Month - Be Involved! - Meriem Bensalem-Owen

Raising awareness of epilepsy amongst everyone for Epilepsy Awareness Month - through events and just chatting! With epileptologist Meriem Bensalem-Owen.
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🔗 Website & more about Meriem: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/meriem-bensalem-owen-epilepsy-awareness-month-being-involved
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Chapters 📖
00:00 Meet Meriem
02:27 Why focus on the epilepsies?
03:54 Promoting epilepsy awareness through bourbon!
05:51 Activities for Epilepsy Awareness Month - inc the Mayor of Lexington!
08:37 Help raise awareness during Epilepsy Awareness Month - through the gym…
10:09 Educating researchers and scientists about epilepsy!
12:17 Reassuring people with a new diagnosis of epilepsy
13:24 Telling PWE that heaps of people behind the scene are working for them
15:01 Thank you
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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Epilepsy - Fundraising for Care - Romania - Eugenia Roza

Learn how funds are generated for the care of children with an epilepsy, fun times, and how it’s crucial to work with the whole family - with peadiatric neurologist and secretary of ILAE YES, Eugenia Roza, Romania.
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🔗 Website & more about Eugenia: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/eugenia-roza-epilepsy-fundraising-for-care-romania
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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#epilepsy #EugeniaRoza #Seizures #peadiatricepilepsy

Biochemistry In Epilepsy Research - Lafora Disease - Matt Gentry

Biochemist Matt Gentry shares with us his extensive research into the ultra-rare epilepsy Lafora Disease, his motivation from working with families, the brilliant work of the Lafora Disease charity Chelsea’s Hope, and support from both the NIH and the Chan Zuckerberg Initiative.
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🔗 Website & more about Matthew Gentry: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/matthew-gentry-biochemistry-epilepsy-research-lafora-disease 
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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Saving Lives: SUDEP Action Day - Sammy Ashby

Learn about SUDEP (Sudden Unexpected Death in Epilepsy), SUDEP Action Day (18th Oct 2023), minimising risks, and saving lives! With Sammy Ashby of SUDEP Action.
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🔗 Website & more about Sammy Ashby: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/sammy-ashby-saving-lives-sudep-action-day
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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Nature: A “Treatment” For Epilepsy? - Elisabeth Doran

Exposure to nature: plants, water noises, and more, are proven to be of distinct benefit to human health. Epileptologist, Elisabeth Doran from St. James’s Hospital in Ireland explains the benefits of exposure to nature for those with an epilepsy.
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🔗 Website & more about Elisabeth Doran: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/elisabeth-doran-nature-treatment-for-epilepsy
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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Genetic Epilepsy - Lafora Disease - Challenges & Hopes - Berge Minassian

Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the research taking place to hopefully improve and save the lives of the children affected, with Berge Minassian.
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🔗 Website & more about Berge: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/berge-minassian-lafora-disease 
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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Exciting Research Into The Ultra-Rare Epilepsy: Lafora Disease - Jordi Duran

Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the exciting research taking place to try and improve and save the lives of the children affected. With global lead researcher Jordi Duran.
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🔗 Website & more about Jordi: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/jordi-duran-lafora-disease 
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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Ultra-Rare Epilepsy: Lafora Disease - José Serratosa

Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the research taking place to hopefully improve and save the lives of the children affected. With lead epileptologist and researcher José Serratosa of the Hospital Universitario Fundación Jiménez Díaz, Madrid, Spain. This is the first of 3 of our episodes re the ultra-rare genetic epilepsy: Lafora Disease.
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🔗 Website & more about José: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/jose-serratosa-lafora-disease 
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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