Epilepsy Sparks Insights
Sparking interest and understanding in the epilepsies whilst bridging the communication gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Hosted by Torie Robinson. **NOT FOR CLINICAL OR PATIENT DECISION-MAKING* Visit www.torierobinson.com & www.epilepsysparks.com.
Episodes

Thursday Feb 22, 2024
Thursday Feb 22, 2024
How useful is and can AI be in helping people with an epilepsy? How safe it it? What are the biases to be challenged and the ethics to be followed? Hear answers from Daniel Goldenholz of Harvard Beth Israel Deaconess Medical Center.
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🔗 Website & more about Daniel: 👇🏻
www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-ai-safety-ethics-biases
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Chapters 📖
00:00 Clip & intro
00:59 Meet Daniel
01:30 AI is fun and important for epilepsy
02:33 Using AI usefully and safely
05:12 Ethics and AI biased training
07:40 Tricking AI using AI tricks
08:32 Explainable AI controversy
10:40 AI intro pace in healthcare: benefiting and protecting humans
13:30 Epilepsy industry is full of data
14:02 When people don't want to wait
16:03 Not all epilepsy apps are proven to work
17:22 Thank you Daniel
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary
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📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10
#epilepsy #medtech #danielgoldenholz #aibias #medicalai

Thursday Feb 15, 2024
Thursday Feb 15, 2024
“Epilepsy is not only a disease, epilepsy is a symptom of a brain disease. And brain health is everything, belongs to everybody!” Learn more of from and hear of the exciting, upcoming Kuopio Epilepsy Symposium in March 2024 - with exciting lead neurologist, researcher, and world-changer: Reeta Kälviäinen.
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🔗 Website & more about Reetta: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/reetta-kalviainen-genetic-rare-epilepsy-symptom-symposium
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
- X: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
#epilepsy #padaczka #ReettaKälviäinen

Monday Feb 12, 2024
Monday Feb 12, 2024
Hear all about International Epilepsy Day, the needs of those affected by the epilepsies, eradicating stigma, treating and preventing epilepsy, and hope for the future; all with global lead Helen Cross.
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🔗 Website & more about Helen: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/helen-cross-international-epilepsy-day
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- X: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
#epilepsy #InternationalEpilepsyDay #HelenCross #GreatOrmondStreet

Thursday Feb 08, 2024
Thursday Feb 08, 2024
For Children's Mental Health Week meet Kirsten McHale who shares the complex needs of many children with an epilepsy, how their needs are not being met (in the UK), and how services must be improved.
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🔗 Website & more about Kirsten: 👇🏻
www.torierobinson.com/epilepsy-sparks-insights/kirsten-mchale-real-needs-children-with-epilepsy
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Children's Mental Health Week:
www.childrensmentalhealthweek.org.uk
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10
#epilepsy #epilepsynurse #youngepilepsy #childrensmentalhealthweek

Thursday Feb 01, 2024
Thursday Feb 01, 2024
Why are only a small percentage who’d benefit from epilepsy surgery getting it? Hear from neurosurgeon Luke Tomycz of the Epilepsy Institute of New Jersey.------------------------------------------
🔗 Website, transcription, and more about Luke: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-why-arent-more-people-having-epilepsy-surgery
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10
#epilepsy #LukeTomycz #epilepsysurgery #neurosurgery

Thursday Jan 25, 2024
Thursday Jan 25, 2024
Hear about ways of measuring epilepsy surgery success, risks, and managing expectations. With neurosurgeon Luke Tomycz.-----------------------------------------🔗 Website, transcript, and more about Luke: 👇🏻https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-epilepsy-surgery-success-measurement-engel-class
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10
#epilepsy #LukeTomycz #epilepsysurgery #neurosurgery
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Thursday Jan 18, 2024
Thursday Jan 18, 2024
Learn about epilepsy surgery and potential benefits and risks - from epilepsy neurosurgeon of the Epilepsy Institute of New Jersey: Luke Tomycz.
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🔗 Website, transcription, and more about Luke: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-safety-efficacy-epilepsy-surgery
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10
#epilepsy #LukeTomycz #epilepsysurgery #neurosurgery

Thursday Jan 11, 2024
Thursday Jan 11, 2024
Brain tumours commonly cause epilepsy. Learn more about research into this and Brain Tumour-Related Epilepsy, today with Mark Cunningham of Trinity College Dublin.
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🔗 Website & more about Mark: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/mark-cunningham-brain-tumours-tumors-epilepsy
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10
#epilepsy #BrainTumours #BrainTumors #MarkCunningham #RCSI

Thursday Jan 04, 2024
Thursday Jan 04, 2024
Could the amygdala be responsible for lack of air hunger and SUDEP? Learn about the research from neurosurgeon and researcher Brian Dlouhy.
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🔗 Website & more about Brian: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/brian-dloughy-lack-air-hunger-sleep-apnea-amygdala-sudep
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10
#SUDEP #epilepsy #BrianDlouhy #amygdala #apnea

Thursday Dec 28, 2023
Thursday Dec 28, 2023
Epilepsy Specialist Nurses provide a key part of the care package for people with an epilepsy. Hear of the value of flexibility and going above and beyond required, by Neil Williamson.
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🔗 Website & more about Neil: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/neil-williamson-being-an-epilepsy-nurse
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10
#epilepsy #NeilWilliamson #epilepsynurse