Epilepsy Sparks Insights
Sparking interest and understanding in the epilepsies whilst bridging the communication gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Hosted by Torie Robinson. **NOT FOR CLINICAL OR PATIENT DECISION-MAKING* Visit www.torierobinson.com & www.epilepsysparks.com.
Episodes

Thursday Apr 11, 2024
Thursday Apr 11, 2024
5% of a cohort* had at least 1 car accident (and up to 3) before their epilepsy diagnosis! Hear about the global Human Epilepsy Project by Jacqueline French and learn how seizures can present in so many different ways!
*450 people
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🔗 Website & more about Jacqueline: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/jacqueline-french-human-epilepsy-project
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
- X: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
#epilepsy #epilepsyresearch #JacquelineFrench #humanepilepsyproject #EpilepsyStudyConsortium

Thursday Apr 04, 2024
Thursday Apr 04, 2024
Do Autism & Intellectual Disability Come With Epilepsy? Learn of the Epilepsy, Autism and Intellectual Disability “triad” - studied by clinician scientist, epileptologist: Vaishnav Krishnan.
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🔗 Website & more about Vaishnav: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/vaishnav-krishnan-epilepsy-autism-intellectual-disability-triad
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
- X: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
#epilepsy #neurology #autism #intellectualdisability #vaishnavkrishnan

Thursday Mar 28, 2024
Thursday Mar 28, 2024
Learn of the huge reduction in seizures amongst adults with the epilepsy Lennox-Gastaut Syndrome - as the result of DBS! With Linda Dalic.
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🔗 Website & more about Linda: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/linda-dalic-stimulating-brain-reduce-seizures-neuromodulation
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
- X: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
#epilepsy #LindaDalic #LGS #DBS #Neuro
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Tuesday Mar 26, 2024
Tuesday Mar 26, 2024
Hear about the origins of Purple Day, its purpose, the positivity and how to make a difference! With founder: Cassidy Megan!! We talk about how Purple Day was founded, Cassidy's personal epilepsy diagnosis, school, stigma, the diversities of the epilepsies, SUDEP, varying cultural experiences, media portrayals, credible sources of information, and brilliant clinicians!
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🔗 Website & more about Cassidy: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/cassidy-megan-purple-day-openness
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10
#purpleday #epilepsy #cassidymegan

Thursday Mar 21, 2024
Thursday Mar 21, 2024
Brain, Skull, And Neck Implants For Epilepsy?! What's the epilepsy treatment called VNS? Or DBS? Or RNS?! Learn about these cool neuromodulation treatments that can help to prevent and/or control epileptic seizures (!) with star epileptologist Anna Bochenek.
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🔗 Website & more about Anna: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/anna-bochenek-neuromodulation-vns-dbs-rns
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
- X: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
#epilepsy #neuromodulation #AnnaBochenek

Thursday Mar 14, 2024
Thursday Mar 14, 2024
Brain tumours vary greatly and 30% of them cause an epilepsy to develop - hence the name Brain Tumour Related Epilepsy. Hear more for Brain Tumour Awareness Month from cancer neuroscientist: Kate Connor.
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🔗 Website & more about Kate: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/kate-connor-epilepsy-brain-tumours-awareness-month
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10
#epilepsy #braintumour #braintumor #braintumourrelatedepilepsy #KateConnor

Thursday Mar 07, 2024
Thursday Mar 07, 2024
Surprising and exciting rare epilepsy (STXBP1) research discoveries that have led to the enhancement of excitatory synapses as a proposed treatment - by Jean-François Perrier of the University of Copenhagen, Denmark.
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🔗 Website & more about Jean-François: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/jean-francois-perrier-STXBP1-excitatory-inhibitory-synapses
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
- X: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
#epilepsy #STXBP1 #Jean-FrançoisPerrier #genetics

Thursday Feb 29, 2024
Thursday Feb 29, 2024
Could we accurately predict epileptic seizures using AI? How accurate do predictions need to be? How cool to use do devices need to be?! Could seizure forecasting reduce injuries, decrease mortality, and improve people’s quality of life? Hear all about it from neurologist: Daniel Goldenholz.
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🔗 Website & more about Daniel: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-seizure-forecasting-artificial-intelligence
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10
#epilepsy #medtech #danielgoldenholz

Thursday Feb 22, 2024
Thursday Feb 22, 2024
How useful is and can AI be in helping people with an epilepsy? How safe it it? What are the biases to be challenged and the ethics to be followed? Hear answers from Daniel Goldenholz of Harvard Beth Israel Deaconess Medical Center.
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🔗 Website & more about Daniel: 👇🏻
www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-ai-safety-ethics-biases
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Chapters 📖
00:00 Clip & intro
00:59 Meet Daniel
01:30 AI is fun and important for epilepsy
02:33 Using AI usefully and safely
05:12 Ethics and AI biased training
07:40 Tricking AI using AI tricks
08:32 Explainable AI controversy
10:40 AI intro pace in healthcare: benefiting and protecting humans
13:30 Epilepsy industry is full of data
14:02 When people don't want to wait
16:03 Not all epilepsy apps are proven to work
17:22 Thank you Daniel
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary
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📲 Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
- Twitter: https://twitter.com/torierobinson10
#epilepsy #medtech #danielgoldenholz #aibias #medicalai

Thursday Feb 15, 2024
Thursday Feb 15, 2024
“Epilepsy is not only a disease, epilepsy is a symptom of a brain disease. And brain health is everything, belongs to everybody!” Learn more of from and hear of the exciting, upcoming Kuopio Epilepsy Symposium in March 2024 - with exciting lead neurologist, researcher, and world-changer: Reeta Kälviäinen.
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🔗 Website & more about Reetta: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/reetta-kalviainen-genetic-rare-epilepsy-symptom-symposium
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- X: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
#epilepsy #padaczka #ReettaKälviäinen