Epilepsy Sparks Insights

Purple Day Openness! - Cassidy Megan

Hear about the origins of Purple Day, its purpose, the positivity and how to make a difference! With founder: Cassidy Megan!! We talk about how Purple Day was founded, Cassidy's personal epilepsy diagnosis, school, stigma, the diversities of the epilepsies, SUDEP, varying cultural experiences, media portrayals, credible sources of information, and brilliant clinicians! 
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🔗 Website & more about Cassidy: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/cassidy-megan-purple-day-openness
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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#purpleday #epilepsy #cassidymegan

Brain, Skull, And Neck Implants For Epilepsy?! - Anna Bochenek

Brain, Skull, And Neck Implants For Epilepsy?! What's the epilepsy treatment called VNS? Or DBS? Or RNS?! Learn about these cool neuromodulation treatments that can help to prevent and/or control epileptic seizures (!) with star epileptologist Anna Bochenek.
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🔗 Website & more about Anna: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/anna-bochenek-neuromodulation-vns-dbs-rns
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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#epilepsy #neuromodulation #AnnaBochenek

Epilepsy Caused by Brain Tumours - Kate Connor

Brain tumours vary greatly and 30% of them cause an epilepsy to develop - hence the name Brain Tumour Related Epilepsy. Hear more for Brain Tumour Awareness Month from cancer neuroscientist: Kate Connor.
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🔗 Website & more about Kate: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/kate-connor-epilepsy-brain-tumours-awareness-month
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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#epilepsy #braintumour #braintumor #braintumourrelatedepilepsy #KateConnor

Increasing Neuronal Excitement To Treat An Epilepsy?! - Jean-François Perrier

Surprising and exciting rare epilepsy (STXBP1) research discoveries that have led to the enhancement of excitatory synapses as a proposed treatment - by Jean-François Perrier of the University of Copenhagen, Denmark.
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🔗 Website & more about Jean-François: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/jean-francois-perrier-STXBP1-excitatory-inhibitory-synapses
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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#epilepsy #STXBP1 #Jean-FrançoisPerrier #genetics

Seizure Forecasting Using AI - Daniel Goldenholz

Could we accurately predict epileptic seizures using AI? How accurate do predictions need to be? How cool to use do devices need to be?! Could seizure forecasting reduce injuries, decrease mortality, and improve people’s quality of life? Hear all about it from neurologist: Daniel Goldenholz.
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🔗 Website & more about Daniel: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-seizure-forecasting-artificial-intelligence
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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#epilepsy #medtech #danielgoldenholz  

AI & Epilepsy: Ethics & Biases - Daniel Goldenholz

How useful is and can AI be in helping people with an epilepsy? How safe it it? What are the biases to be challenged and the ethics to be followed? Hear answers from Daniel Goldenholz of Harvard Beth Israel Deaconess Medical Center.
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🔗 Website & more about Daniel: 👇🏻
www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-ai-safety-ethics-biases
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Chapters 📖
00:00 Clip & intro
00:59 Meet Daniel
01:30 AI is fun and important for epilepsy
02:33 Using AI usefully and safely
05:12 Ethics and AI biased training
07:40 Tricking AI using AI tricks
08:32 Explainable AI controversy
10:40 AI intro pace in healthcare: benefiting and protecting humans
13:30 Epilepsy industry is full of data
14:02 When people don't want to wait
16:03 Not all epilepsy apps are proven to work
17:22 Thank you Daniel
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary
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#epilepsy #medtech #danielgoldenholz #aibias #medicalai

Epilepsy Is A Symptom! - Reetta Kälviäinen

“Epilepsy is not only a disease, epilepsy is a symptom of a brain disease. And brain health is everything, belongs to everybody!” Learn more of from and hear of the exciting, upcoming Kuopio Epilepsy Symposium in March 2024 - with exciting lead neurologist, researcher, and world-changer: Reeta Kälviäinen.
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🔗 Website & more about Reetta: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/reetta-kalviainen-genetic-rare-epilepsy-symptom-symposium
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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#epilepsy #padaczka #ReettaKälviäinen

International Epilepsy Day!! - Helen Cross

Hear all about International Epilepsy Day, the needs of those affected by the epilepsies, eradicating stigma, treating and preventing epilepsy, and hope for the future; all with global lead Helen Cross.
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🔗 Website & more about Helen: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/helen-cross-international-epilepsy-day
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
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#epilepsy #InternationalEpilepsyDay #HelenCross #GreatOrmondStreet

The Real Needs of Children With Epilepsy - Kirsten McHale

For Children's Mental Health Week meet Kirsten McHale who shares the complex needs of many children with an epilepsy, how their needs are not being met (in the UK), and how services must be improved.
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🔗 Website & more about Kirsten: 👇🏻
www.torierobinson.com/epilepsy-sparks-insights/kirsten-mchale-real-needs-children-with-epilepsy
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Children's Mental Health Week:
www.childrensmentalhealthweek.org.uk
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
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#epilepsy #epilepsynurse #youngepilepsy #childrensmentalhealthweek
 

Why Aren’t More People Having Epilepsy Surgery? - Luke Tomycz

Why are only a small percentage who’d benefit from epilepsy surgery getting it? Hear from neurosurgeon Luke Tomycz of the Epilepsy Institute of New Jersey.------------------------------------------
🔗 Website, transcription, and more about Luke: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-why-arent-more-people-having-epilepsy-surgery
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
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#epilepsy #LukeTomycz #epilepsysurgery #neurosurgery