Epilepsy Sparks Insights

Led by Torie Robinson, ”Epilepsy Sparks Insights” is an educational podcast to spark interest in and bridge the gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Follow on Twitter: @TorieRobinson10 & @EpilepsySparks. Visit www.torierobinson.com & www.epilepsysparks.com. **NOT FOR CLINICAL OR PATIENT DECISION MAKING**

Listen on:

  • Podbean App

Episodes

Thursday Jun 13, 2024

Hear about Autoimmune-Associated Epilepsy and the intersection between epilepsy and immunology - in part 1 of 2 with epileptologist Claude Steriade from NYU Langone Health Epilepsy Center! Claude explains the causes, mechanisms, and impacts of Autoimmune-Associated Epilepsy upon people's lives, plus, how crucial early diagnoses and intervention are.
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🔗 Transcription & more about Claude: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/claude-steriade-autoimmune-associated-epilepsy-immunology
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
www.epilepsysparks.com/glossary
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📲 Join me on social media!
- X: https://twitter.com/torierobinson10 
- LinkedIn: https://www.linkedin.com/torierobinson 
- Instagram: https://www.instagram.com/torierobinson10 
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker 
- TikTok: https://www.tiktok.com/@torierobinson10
 
 
#autoimmune #autoimmuneepilepsy #neurology #immunology

Thursday Jun 06, 2024

Mark Cook and Torie discuss the significant improvements in epilepsy treatments over the past few decades - thanks to technologies like MRI and genetics. Mark also explores the issue of overreporting and underreporting of seizures by patients and the potential of ambulatory EEG monitoring and big data analysis to provide a more accurate understanding of seizure activity which can lead to both improved treatments and improving peoples’ quality of life.
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📖 Transcript & more on Mark: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/mark-cook-huge-advances-in-eeg-monitoring-analysis
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
www.epilepsysparks.com/glossary
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📲 Join me on social media!
- X: https://twitter.com/torierobinson10 
- LinkedIn: https://www.linkedin.com/torierobinson 
- Instagram: https://www.instagram.com/torierobinson10 
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker 
- TikTok: https://www.tiktok.com/@torierobinson10
 
 
#epilepsy #medtech #EEG #ambulatoryEEG

Thursday May 30, 2024

Deb Pal and Paul Gringras discuss their research on the links between sleep and seizures in epilepsy; sharing their work on the CASTLE project, which aims to improve sleep and Quality of Life for children, young people, and families affected. They discuss both their app called COSI - which provides evidence-based sleep interventions for parents, and the upcoming CASTLE conference, where they shall disseminate  their research findings and discuss the importance of personalised approaches to sleep management in epilepsy.
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Interested in attending the conference? 🎫
Contact us via deb.pal@kcl.ac.uk or via our X accounts @palneurolab, @TorieRobinson10, or @EpilepsySparks.
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🔗 Website & more about Deb and Paul: 👇🏻
www.torierobinson.com/epilepsy-sparks-insights/deb-pal-paul-gringras-exploring-the-links-between-sleep-epilepsy-castle
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
www.epilepsysparks.com/glossary
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📲 Join me on social media!
- X: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
#sleep #epilepsy #epilepsyresearch #CASTLE #COZY

Thursday May 23, 2024

What should someone do if interested in adopting the ketogenic diet or looking further into "metabolic psychiatry"? Hear about sacrifices, benefits, weight loss, constipation, nutrition, and having the right support. All in part 3 of 3 with the “pharmacist who gave up drugs”, Graham Phillips.
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🔗 Website & more about Graham: 👇🏻
www.torierobinson.com/epilepsy-sparks-insights/graham-phillips-epilepsy-changing-metabolism-stabilise-brain-ketogenic
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
www.epilepsysparks.com/glossary
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📲 Join me on social media!
- X: torierobinson10
- LinkedIn: torierobinson
- Instagram: torierobinson10
- Facebook: TorieRobinsonSpeaker
- TikTok: @torierobinson10
#epilepsy #keto #ketogenic #metabolichealth #weightloss

Thursday May 16, 2024

Learn of the evolution of the ketogenic diet, metabolic psychiatry, the treatment overlap between different diagnoses (e.g. the epilepsies and mood disorders), recommended reads, and the cognitive dissonance of many regarding the ketogenic diet. This is part 2 of 3 with the Pharmacist Who Gave Up Drugs: Graham Phillips.
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🔗 Website & more about Graham: 👇🏻
www.torierobinson.com/epilepsy-sparks-insights/graham-phillips-hunger-mood-epilepsy-metabolism-ketogenic
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary
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📲 Join me on social media!
- X: torierobinson10
- LinkedIn: torierobinson
- Instagram: torierobinson10
- Facebook: TorieRobinsonSpeaker
- TikTok: torierobinson10
#epilepsy #keto #ketogenic #metabolichealth #weightloss
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Thursday May 09, 2024

The Pharmacist Who Gave Up Drugs introduces us to the impacts of the western diet on our health, quality of life, life expectancy - and the potential benefits of the ketogenic diet - in part 1 of 3: Graham Phillips.
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🔗 Website & more about Graham: 👇🏻
www.torierobinson.com/epilepsy-sparks-insights/graham-phillips-ketogenic-diet-pharmacist-part1
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- X: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
 
#epilepsy #keto #ketogenic

Thursday May 02, 2024

M. Scott Perry explains how Epilepsy Researchers require intros and support to be the best that they can be and initiate, manage, and see results. It’s possible through the Pediatric Epilepsy Research Consortium (PERC).
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🔗 Website & more about Scott: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/m-scott-perry-pediatric-epilepsy-research/consortium
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- X: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
 
#epilepsy #pediatricepilepsy #scottperry #PERC #epilepsyresearch

Thursday Apr 25, 2024

Hear about research into a new way of inhibiting temporal lobe seizure activity through GABAergic interneuron cell therapy! With epileptologist and neuroscientist David Spencer.
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🔗 Website & more about David: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/david-spencer-preventing-seizures-using-stem-cells 
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- X: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
 
 
#epilepsy #DavidSpencer #stemcell #interneuron #GABA

Thursday Apr 18, 2024

It's wild: when clinicians mistake an epilepsy (caused by a brain tumour!) for menopause! Or, when a parent doesn't believe that their daughter could have an epilepsy...! Why aren't organisations and governments promoting epilepsy awareness as well as they do stroke and MS?! Tune in to hear all about it from leading epilepsy specialist: Jacqueline French.
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🔗 Website & more about Jacqueline: 👇🏻
jacqueline-french-epilepsy-menopause
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🔗 Kin - that Irish TV series: 👇🏻
IMDB
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- X: torierobinson10
- LinkedIn: torierobinson
- Instagram: torierobinson10
- Facebook: TorieRobinsonSpeaker
- TikTok: torierobinson10
 
#epilepsy #epilepsyresearch #JacquelineFrench #humanepilepsyproject #EpilepsyStudyConsortium

Wednesday Apr 17, 2024

Hear about the one-of-a-kind 6th Dianalund International Conference on Epilepsy in May 2024 - with lead genetic clinicians and researchers Elena Gardella, Rikke Møller, and Guido Rubboli.
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🔗 Website & more about Elena, Rikke, and Guido: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/6th-dianalund-international-conference-epilepsy-genetics-denmark-elena-gardella-rikke-moller-guido-rubboli
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- X: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- TikTok: https://www.tiktok.com/@torierobinson10
 
#epilepsy #epilepsygenetics #monogenic #phenotypes #filadelfia #danishepilepsycenter #DICE

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