Epilepsy Sparks Insights

How Are Gut Microbiota & Epilepsy Connected? - Stefanie Prast-Nielsen

Hear from Research Specialist & PI Stefanie Prast-Nielsen, from the Centre for Translational Microbiome Research at Karolinska Institutet in Stockholm, Sweden, about her epilepsy research into gut microbiota; explaining to us what they are, how they connect with the brain, and the link between them, our poo/feces, and seizures! This is part 1 of 2.
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More about Stefanie: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/stefanie-prast-nielsen-01
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Genseize: Whole Genome Sequencing For People With Epilepsy - Usha Kini

This week we chat with Usha Kini: a professor in clinical genetics from Oxford University who tells us about her work on the new, exciting epilepsy genetics pilot project called Genseize. For Genseize they are recruiting individuals and families affected by a primary epilepsy who’d like to potentially find out more about their own condition which may lead to improved treatment, but also improve diagnoses and care for other people - around us now, and in the future.
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👉🏻 Genseize project: https://www.epilepsysparks.com/research-involvement#genseize
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👉🏻 More about Usha: https://www.torierobinson.com/epilepsy-sparks-insights/usha-kini 
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Minimising Suicidality in People With Epilepsy - Heidi Munger Clary

Adult neurologist, epilepsy specialist, and researcher Heidi Munger Clary specialises in helping people with epilepsy who experience anxiety and depression and who are at risk of suicidality. Heidi tells us about patient risk identification and prevention, access to help, and tools for clinicians and patients. Which are in great demand!! Only watch/listen to this video if it is safe for you to do so - i.e. it is not a trigger for any awful feelings.
If you haven’t listened to episode #01 with Heidi (about her work and research into depression, anxiety, and epilepsy) check it out here: https://epilepsysparksinsights.podbean.com/e/helping-epilepsy-patients-with-anxiety-depression-heidi-munger-clary/?token=86b4e31086fa49381490742d6baab231
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More about Heidi: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/heidi-munga-clary-02
Email: hmungerc@wakehealth.edu
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Helplines: 👇🏻
https://www.epilepsysparks.com/mental-health
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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Helping Epilepsy Patients With Anxiety & Depression - Heidi Munger Clary

Anxiety and depression. Each of these mental illnesses are incredibly common as part of epilepsy. In anticipation of World Mental Health Day (10th October), we talk about anxiety and depression as part of epilepsy - with adult epileptologist Heidi Mungar Clary from the Wake Forest University School of Medicine, in North Carolina, US. Heidi tells us about her cool research into the topics  (presented at the ILAE in Geneva) and how we can improve the lives of people affected by epilepsy, depression, and anxiety.
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More about Heidi: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/heidi-munger-clary-01
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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Remote Mental Health Therapy For People With Epilepsy - Milena Gandy

Learn how the depression and anxiety of people with epilepsy can be addressed in a unique, remote way by clinical psychologist & senior research fellow Milena Gandy - writer of The Wellbeing Neuro Course.
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More about Milena: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/milena-gandy
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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What Is An Epilepsy Specialist Nurse? - Phil Tittensor, UK

In episode 2 with Phil Tittensor, he shares with us how and why he became an Epilepsy Consultant Nurse and some of his research projects covering risk communication, climate change, and Artificial Intelligence. If you haven’t seen episode #01 with Phil, check it out here: https://epilepsysparksinsights.podbean.com/e/what-is-an-epilepsy-specialist-nurse-phil-tittensor-uk-01
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More about Phil: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/phil-tittensor-02
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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What Is An Epilepsy Specialist Nurse? - Phil Tittensor, UK #01

Learn about the value of Epilepsy Specialist Nurses - who often do a whole lot more than their title may imply. This week Phil Tittensor, a consultant nurse for the epilepsies, a lecturer for the Uni of Wolverhampton, and the Chair of the Epilepsy Specialist Nurses Association, UK tells us about the variety of huge responsibilities of Epilepsy Nurses, what services they offer, and why we (patients, families, and neurologists) need them. 
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More about Phil: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/phil-tittensor
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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Learning How To Interpret EEGs - Shilpa Reddy

EEGs are not always easy to interpret! Learn how lead peadiatric epileptologist, Asst. Prof. Shilpa Reddy from the Children’s Hospital at Vanderbilt, Tennessee, US trains other clinicians when it comes to EEGs, epilepsy diagnoses, encouraging questions, and reaching out to the public! 
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More about Shilpa and her work: 
👉🏻 https://www.torierobinson.com/epilepsy-sparks-insights/shilpa-reddy
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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Having a Baby When You Have Epilepsy - Kim Morley

Advanced midwifery practitioner Kim Morley specialises in helping people with epilepsy who want to have children. Kim explains how she has and does positively influence the lives of people affected by epilepsy when it comes to having children (or not!).
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👉🏻 More about Kim: https://www.torierobinson.com/epilepsy-sparks-insights/kim-morley
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👉🏻 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 
https://www.epilepsysparks.com/glossary 
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Translational Medicine: Patient-orientated Epilepsy Research - Allan Bayat

Peadiatric neurologist Allan Bayat from the Danish Epilepsy Center speaks of his Ph.D. in genetic epilepsies, his passion for translational medicine for the children and families affected, and future studies into the impact of modified treatments on comorbidities.
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👉🏻  More about Allan: https://www.torierobinson.com/epilepsy-sparks-insights/allan-bayat
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👉🏻  Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 
https://www.epilepsysparks.com/glossary 
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