Epilepsy Sparks Insights

Why Support Caregivers Of Those With A Developmental and Epileptic Encephalopathy? Eden Robertson

Behavioural scientist Eden Robertson from UNSW, Australia, shares with us her work into improving the lives of caregivers of children with a Developmental & Epileptic Encephalopathy, with clear messages: the Developmental & Epileptic Encephalopathies awfully impact caregivers, who must be provided with education and support. This is part one of two with Eden.
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More about Eden: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/eden-robertson-01
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Climate Change & Epilepsy - Sanjay Sisodiya

Climate change is real. Awfully real. Hear of the real threats posed by climate change to those with epilepsy and what we can do to help make change and minimise risk. With global lead Prof. Sanjay Sisodiya - Consultant Neurologist at UCL Queen Square Institute of Neurology & Neurosurgery, UK. 
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More about Sanjay: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/sanjay-m-sisodiya 
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Graphene Tech: Accessing & Recording Brain Activity Where EEG Electrodes Can’t - Rob Wykes

Hear how graphene technology can access and record abnormal brain activity where EEG electrodes can't! With epilepsy researcher Rob Wykes: from both UCL Hospital for Neurology & Manchester University! 
 
More about Rob: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/rob-wykes
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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#epilepsy #robwykes #neuroscience

How Might The Ketogenic Diet Alter Epileptic Seizures? - Stefanie Prast-Nielsen

Research Specialist Stefanie Prast-Nielsen soeaks of her clinical study involving fecal samples from a group of children with refractory epilepsy who started the ketogenic diet; investigating their gut microbiota and how it may be related to changes in epileptic seizures. Stefanie also talks about future international collaborations in collections of stool samples for furthering this epilepsy research.This is part 2 of 2.
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More about Stefanie: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/stefanie-prast-nielsen-02
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
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How Are Gut Microbiota & Epilepsy Connected? - Stefanie Prast-Nielsen

Hear from Research Specialist & PI Stefanie Prast-Nielsen, from the Centre for Translational Microbiome Research at Karolinska Institutet in Stockholm, Sweden, about her epilepsy research into gut microbiota; explaining to us what they are, how they connect with the brain, and the link between them, our poo/feces, and seizures! This is part 1 of 2.
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More about Stefanie: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/stefanie-prast-nielsen-01
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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Genseize: Whole Genome Sequencing For People With Epilepsy - Usha Kini

This week we chat with Usha Kini: a professor in clinical genetics from Oxford University who tells us about her work on the new, exciting epilepsy genetics pilot project called Genseize. For Genseize they are recruiting individuals and families affected by a primary epilepsy who’d like to potentially find out more about their own condition which may lead to improved treatment, but also improve diagnoses and care for other people - around us now, and in the future.
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👉🏻 Genseize project: https://www.epilepsysparks.com/research-involvement#genseize
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👉🏻 More about Usha: https://www.torierobinson.com/epilepsy-sparks-insights/usha-kini 
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Minimising Suicidality in People With Epilepsy - Heidi Munger Clary

Adult neurologist, epilepsy specialist, and researcher Heidi Munger Clary specialises in helping people with epilepsy who experience anxiety and depression and who are at risk of suicidality. Heidi tells us about patient risk identification and prevention, access to help, and tools for clinicians and patients. Which are in great demand!! Only watch/listen to this video if it is safe for you to do so - i.e. it is not a trigger for any awful feelings.
If you haven’t listened to episode #01 with Heidi (about her work and research into depression, anxiety, and epilepsy) check it out here: https://epilepsysparksinsights.podbean.com/e/helping-epilepsy-patients-with-anxiety-depression-heidi-munger-clary/?token=86b4e31086fa49381490742d6baab231
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More about Heidi: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/heidi-munga-clary-02
Email: hmungerc@wakehealth.edu
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Helplines: 👇🏻
https://www.epilepsysparks.com/mental-health
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
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Helping Epilepsy Patients With Anxiety & Depression - Heidi Munger Clary

Anxiety and depression. Each of these mental illnesses are incredibly common as part of epilepsy. In anticipation of World Mental Health Day (10th October), we talk about anxiety and depression as part of epilepsy - with adult epileptologist Heidi Mungar Clary from the Wake Forest University School of Medicine, in North Carolina, US. Heidi tells us about her cool research into the topics  (presented at the ILAE in Geneva) and how we can improve the lives of people affected by epilepsy, depression, and anxiety.
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More about Heidi: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/heidi-munger-clary-01
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
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Remote Mental Health Therapy For People With Epilepsy - Milena Gandy

Learn how the depression and anxiety of people with epilepsy can be addressed in a unique, remote way by clinical psychologist & senior research fellow Milena Gandy - writer of The Wellbeing Neuro Course.
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More about Milena: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/milena-gandy
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What Is An Epilepsy Specialist Nurse? - Phil Tittensor, UK

In episode 2 with Phil Tittensor, he shares with us how and why he became an Epilepsy Consultant Nurse and some of his research projects covering risk communication, climate change, and Artificial Intelligence. If you haven’t seen episode #01 with Phil, check it out here: https://epilepsysparksinsights.podbean.com/e/what-is-an-epilepsy-specialist-nurse-phil-tittensor-uk-01
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More about Phil: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/phil-tittensor-02
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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