Epilepsy Sparks Insights
Sparking interest and understanding in the epilepsies whilst bridging the communication gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Hosted by Torie Robinson. **NOT FOR CLINICAL OR PATIENT DECISION-MAKING* Visit www.torierobinson.com & www.epilepsysparks.com.
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Episodes
Thursday Feb 02, 2023
Thursday Feb 02, 2023
In anticipation of Valentine's Day(!), epileptologist & psychiatrist Oliver Henning speaks about the common sexual challenges amongst some people with an epilepsy. Last time we checked, the majority of people with epilepsy were, on paper, sexual creatures, but, indeed, many can struggle with their sex lives - at times - a little more than those without epilepsy. Learn more through an open chat with Oliver. This is part 1 of 2.
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More about Oliver: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/oliver-henning-sex-epilepsy-01
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
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👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
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📲 Join me on social media!
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Thursday Jan 26, 2023
Thursday Jan 26, 2023
Adult neurologist Abril Marone speaks of her sensitivity in managing the patient experience from paediatric to adult care, plus speaks of how important it is for patients to be able to speak about sensitive, personal concerns; such as sexuality.
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More about Abril: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/abril-marone-patient-transition-paediatric-adult-care-sexuality
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
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👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
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📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
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- Website: https://www.torierobinson.com
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Thursday Jan 19, 2023
Thursday Jan 19, 2023
Valentina Galassi Deforie, a final year Ph.D. student of the UCL Neurogenetics Lab, speaks of using frog eggs to research the epilepsies and some new mutations discovered - e.g. those of the KCNA6 and NARS1 genes!
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More about Valentina: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/valentina-galassi-deforie-frog-eggs-research-epilepsy-KCNA6-NARS1
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
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👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
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📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
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- Website: https://www.torierobinson.com
Thursday Jan 12, 2023
Thursday Jan 12, 2023
Stéphane Legriel tells us about the ICTALGroup - an organisation formed of neurologists around France who share knowledge to improve the care of people experiencing status epilepticus.
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More about Stéphane: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/stephane-legriel-02
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
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📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
Thursday Jan 05, 2023
Thursday Jan 05, 2023
We hear from Stéphane Legriel: a Critical Care/ICU physician with a passion for helping people with experiencing status epilepticus - an ongoing, very dangerous, epileptic seizure. Stéphane tells us all about different types of status epilepticus and emergency care for people who experience it.
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More about Stéphane: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/stephane-legriel-01
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
Thursday Dec 29, 2022
Thursday Dec 29, 2022
Scott Perry tells us about identifying and challenging racial disparities in epilepsy care, followed by a chat about brain art - an important method of communication when it comes to epilepsy, neuroscience, and more! This is part 2 of 2 with Scott.
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More about Scott: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/scott-perry-02
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Book mentioned: "The Maths of Life & Death" - Kit Yates: https://www.amazon.co.uk/Maths-Life-Death-Kit-Yates/dp/1787475425
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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Artists mentioned 🎨
Dana Simmons: https://www.dana-simmons.com
John Bramblitt: https://bramblitt.com
Stephanie Gowdy: Alyrical.com
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👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
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👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
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📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
Thursday Dec 22, 2022
Thursday Dec 22, 2022
Scott Perry - Head of neurosciences and pediatric epileptologist at Cook Children’s hospital tells us all about genetic testing re the epilepsies, PERC: the Pediatric Epilepsy Research Consortium, and measuring the effectiveness of epilepsy surgeries in children. This is part 1 of 2 with Scott.
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More about Scott: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/scott-perry-01
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
Thursday Dec 15, 2022
Thursday Dec 15, 2022
Hear of Richard Baines and his team use fruit flies in epilepsy research, the discoveries made, and the next steps for epilepsy research! Also hear more about the incredible Fly Facility at Manchester University!r University!
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More about Richard: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/richard-baines-02
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
Thursday Dec 08, 2022
Thursday Dec 08, 2022
Hear of HOW Richard Baines and his team use fruit flies in epilepsy research, the discoveries made, and the next steps for epilepsy research! Also hear more about the incredible Fly Facility at Manchester University!
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More about Richard: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/richard-baines-01
------------------------------------------
Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
Thursday Dec 01, 2022
Thursday Dec 01, 2022
Post-doc research fellow Eden Robertson from UNSW, Australia, speaks of her GenE Compass project results and how to support caregivers of those with a Developmental & Epileptic Encephalopathy. Eden shares what has already been learnt from the project, the benefits of altruism, and working towards health equity through leaning and working with communities.
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More about Eden: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/eden-robertson-02
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com