Epilepsy Sparks Insights
Led by Torie Robinson, ”Epilepsy Sparks Insights” is an educational podcast to spark interest in and bridge the gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Follow on Twitter: @TorieRobinson10 & @EpilepsySparks. Visit www.torierobinson.com & www.epilepsysparks.com. **NOT FOR CLINICAL OR PATIENT DECISION MAKING**
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Episodes
Thursday Oct 13, 2022
Thursday Oct 13, 2022
Adult neurologist, epilepsy specialist, and researcher Heidi Munger Clary specialises in helping people with epilepsy who experience anxiety and depression and who are at risk of suicidality. Heidi tells us about patient risk identification and prevention, access to help, and tools for clinicians and patients. Which are in great demand!! Only watch/listen to this video if it is safe for you to do so - i.e. it is not a trigger for any awful feelings.
If you haven’t listened to episode #01 with Heidi (about her work and research into depression, anxiety, and epilepsy) check it out here: https://epilepsysparksinsights.podbean.com/e/helping-epilepsy-patients-with-anxiety-depression-heidi-munger-clary/?token=86b4e31086fa49381490742d6baab231
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👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
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👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
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More about Heidi: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/heidi-munga-clary-02
Email: hmungerc@wakehealth.edu
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Helplines: 👇🏻
https://www.epilepsysparks.com/mental-health
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
Thursday Oct 06, 2022
Thursday Oct 06, 2022
Anxiety and depression. Each of these mental illnesses are incredibly common as part of epilepsy. In anticipation of World Mental Health Day (10th October), we talk about anxiety and depression as part of epilepsy - with adult epileptologist Heidi Mungar Clary from the Wake Forest University School of Medicine, in North Carolina, US. Heidi tells us about her cool research into the topics (presented at the ILAE in Geneva) and how we can improve the lives of people affected by epilepsy, depression, and anxiety.
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👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
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👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
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More about Heidi: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/heidi-munger-clary-01
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
Thursday Sep 29, 2022
Thursday Sep 29, 2022
Learn how the depression and anxiety of people with epilepsy can be addressed in a unique, remote way by clinical psychologist & senior research fellow Milena Gandy - writer of The Wellbeing Neuro Course.
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👉🏻 Become a patron for early access to the show: https://www.patreon.com/torierobinson
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👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
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More about Milena: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/milena-gandy
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
Thursday Sep 22, 2022
Thursday Sep 22, 2022
In episode 2 with Phil Tittensor, he shares with us how and why he became an Epilepsy Consultant Nurse and some of his research projects covering risk communication, climate change, and Artificial Intelligence. If you haven’t seen episode #01 with Phil, check it out here: https://epilepsysparksinsights.podbean.com/e/what-is-an-epilepsy-specialist-nurse-phil-tittensor-uk-01
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👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
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👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
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More about Phil: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/phil-tittensor-02
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
Thursday Sep 15, 2022
Thursday Sep 15, 2022
Learn about the value of Epilepsy Specialist Nurses - who often do a whole lot more than their title may imply. This week Phil Tittensor, a consultant nurse for the epilepsies, a lecturer for the Uni of Wolverhampton, and the Chair of the Epilepsy Specialist Nurses Association, UK tells us about the variety of huge responsibilities of Epilepsy Nurses, what services they offer, and why we (patients, families, and neurologists) need them.
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👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
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👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
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More about Phil: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/phil-tittensor
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
Thursday Sep 08, 2022
Thursday Sep 08, 2022
EEGs are not always easy to interpret! Learn how lead peadiatric epileptologist, Asst. Prof. Shilpa Reddy from the Children’s Hospital at Vanderbilt, Tennessee, US trains other clinicians when it comes to EEGs, epilepsy diagnoses, encouraging questions, and reaching out to the public!
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👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
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👉🏻 T-shirts, mugs, notebooks: https://www.epilepsysparks.com/t-shirts
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More about Shilpa and her work:
👉🏻 https://www.torierobinson.com/epilepsy-sparks-insights/shilpa-reddy
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Website: https://www.torierobinson.com
Thursday Sep 01, 2022
Thursday Sep 01, 2022
Advanced midwifery practitioner Kim Morley specialises in helping people with epilepsy who want to have children. Kim explains how she has and does positively influence the lives of people affected by epilepsy when it comes to having children (or not!).
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👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
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👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
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👉🏻 More about Kim: https://www.torierobinson.com/epilepsy-sparks-insights/kim-morley
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👉🏻 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary!
https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
Thursday Aug 25, 2022
Thursday Aug 25, 2022
Peadiatric neurologist Allan Bayat from the Danish Epilepsy Center speaks of his Ph.D. in genetic epilepsies, his passion for translational medicine for the children and families affected, and future studies into the impact of modified treatments on comorbidities.
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👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
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👉🏻 More about Allan: https://www.torierobinson.com/epilepsy-sparks-insights/allan-bayat
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👉🏻 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary!
https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
Thursday Aug 18, 2022
Thursday Aug 18, 2022
Talking to scientists Moran Rubinstein from Tel Aviv University in Israel and Eric Krema from Universite de Montpellier in France who together work on a project into gene therapy for the rare genetic epilepsy Dravet Syndrome. They speak of their research, its exciting outcomes, and the positive impact that this could have on treatments for patients!If you haven't yet seen the first in this set of two episodes then check it out!------------------------------------------👉🏻 T-shirts: https://epilepsy-sparks.creator-spring.com ------------------------------------------More about Moran & Eric: 👇🏻https://www.torierobinson.com/epilepsy-sparks-insights/moran-rubinstein-eric-kremer-02------------------------------------------Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻https://www.epilepsysparks.com/glossary------------------------------------------Chapters 📖00:00 Intro00:37 How the therapy shall be used02:16 Therapy for children and adults03:05 Use in other epilepsies04:32 Patents and alterations05:17 Pharma companies06:11 Safety: the long journey from mice to patients07:17 Success, editing & retesting the therapy08:01 Treating the cause rather than the symptoms08:43 Where and when to inject the virus - an analogy10:42 Relating as a patient without Dravet12:02 Next steps with pharma & governments14:13 Special thanks----------------------------------------
Join me on:
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Check out the website: https://www.torierobinson.com
Thursday Aug 11, 2022
Thursday Aug 11, 2022
Talking to scientists Moran Rubinstein from Tel Aviv University in Israel and Eric Krema from Universite de Montpellier in France who together work on a project into gene therapy for the rare genetic epilepsy Dravet Syndrome. They speak of their research, its exciting outcomes, and the positive impact that this could have on treatments for patients!
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More about Moran & Eric:
https://www.torierobinson.com/epilepsy-sparks-insights/moran-rubinstein-eric-kremer-01
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Glossary:
There are many terms used in this recording which you can find in the Epilepsy Sparks Glossary: https://www.epilepsysparks.com/glossary
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Follow Torie on:
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Check out the website: https://www.torierobinson.com