Epilepsy Sparks Insights
Led by Torie Robinson, ”Epilepsy Sparks Insights” is an educational podcast to spark interest in and bridge the gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Follow on Twitter: @TorieRobinson10 & @EpilepsySparks. Visit www.torierobinson.com & www.epilepsysparks.com. **NOT FOR CLINICAL OR PATIENT DECISION MAKING**
Episodes
Thursday Dec 22, 2022
Thursday Dec 22, 2022
Scott Perry - Head of neurosciences and pediatric epileptologist at Cook Children’s hospital tells us all about genetic testing re the epilepsies, PERC: the Pediatric Epilepsy Research Consortium, and measuring the effectiveness of epilepsy surgeries in children. This is part 1 of 2 with Scott.
------------------------------------------
More about Scott: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/scott-perry-01
------------------------------------------
Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
Thursday Dec 15, 2022
Thursday Dec 15, 2022
Hear of Richard Baines and his team use fruit flies in epilepsy research, the discoveries made, and the next steps for epilepsy research! Also hear more about the incredible Fly Facility at Manchester University!r University!
------------------------------------------
More about Richard: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/richard-baines-02
------------------------------------------
Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
Thursday Dec 08, 2022
Thursday Dec 08, 2022
Hear of HOW Richard Baines and his team use fruit flies in epilepsy research, the discoveries made, and the next steps for epilepsy research! Also hear more about the incredible Fly Facility at Manchester University!
------------------------------------------
More about Richard: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/richard-baines-01
------------------------------------------
Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
Thursday Dec 01, 2022
Thursday Dec 01, 2022
Post-doc research fellow Eden Robertson from UNSW, Australia, speaks of her GenE Compass project results and how to support caregivers of those with a Developmental & Epileptic Encephalopathy. Eden shares what has already been learnt from the project, the benefits of altruism, and working towards health equity through leaning and working with communities.
------------------------------------------
More about Eden: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/eden-robertson-02
------------------------------------------
Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
Thursday Nov 24, 2022
Thursday Nov 24, 2022
Behavioural scientist Eden Robertson from UNSW, Australia, shares with us her work into improving the lives of caregivers of children with a Developmental & Epileptic Encephalopathy, with clear messages: the Developmental & Epileptic Encephalopathies awfully impact caregivers, who must be provided with education and support. This is part one of two with Eden.
------------------------------------------
More about Eden: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/eden-robertson-01
------------------------------------------
Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
Thursday Nov 17, 2022
Thursday Nov 17, 2022
Climate change is real. Awfully real. Hear of the real threats posed by climate change to those with epilepsy and what we can do to help make change and minimise risk. With global lead Prof. Sanjay Sisodiya - Consultant Neurologist at UCL Queen Square Institute of Neurology & Neurosurgery, UK.
------------------------------------------
More about Sanjay: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/sanjay-m-sisodiya
------------------------------------------
Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
Thursday Nov 10, 2022
Thursday Nov 10, 2022
Hear how graphene technology can access and record abnormal brain activity where EEG electrodes can't! With epilepsy researcher Rob Wykes: from both UCL Hospital for Neurology & Manchester University!
More about Rob: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/rob-wykes
------------------------------------------
Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
-------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
#epilepsy #robwykes #neuroscience
Thursday Nov 03, 2022
Thursday Nov 03, 2022
Research Specialist Stefanie Prast-Nielsen soeaks of her clinical study involving fecal samples from a group of children with refractory epilepsy who started the ketogenic diet; investigating their gut microbiota and how it may be related to changes in epileptic seizures. Stefanie also talks about future international collaborations in collections of stool samples for furthering this epilepsy research.This is part 2 of 2.
------------------------------------------
More about Stefanie: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/stefanie-prast-nielsen-02
------------------------------------------
Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
Thursday Oct 27, 2022
Thursday Oct 27, 2022
Hear from Research Specialist & PI Stefanie Prast-Nielsen, from the Centre for Translational Microbiome Research at Karolinska Institutet in Stockholm, Sweden, about her epilepsy research into gut microbiota; explaining to us what they are, how they connect with the brain, and the link between them, our poo/feces, and seizures! This is part 1 of 2.
------------------------------------------
More about Stefanie: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/stefanie-prast-nielsen-01
------------------------------------------
Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
Thursday Oct 20, 2022
Thursday Oct 20, 2022
This week we chat with Usha Kini: a professor in clinical genetics from Oxford University who tells us about her work on the new, exciting epilepsy genetics pilot project called Genseize. For Genseize they are recruiting individuals and families affected by a primary epilepsy who’d like to potentially find out more about their own condition which may lead to improved treatment, but also improve diagnoses and care for other people - around us now, and in the future.
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
------------------------------------------
👉🏻 Genseize project: https://www.epilepsysparks.com/research-involvement#genseize
------------------------------------------
👉🏻 More about Usha: https://www.torierobinson.com/epilepsy-sparks-insights/usha-kini
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com