Epilepsy Sparks Insights

Led by Torie Robinson, ”Epilepsy Sparks Insights” is an educational podcast to spark interest in and bridge the gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Follow on Twitter: @TorieRobinson10 & @EpilepsySparks. Visit www.torierobinson.com & www.epilepsysparks.com. **NOT FOR CLINICAL OR PATIENT DECISION MAKING**

Listen on:

  • Podbean App

Episodes

Thursday Mar 02, 2023

Peadiatric neuropsychiatrist & researcher Rebecca Bromley talks about the needs of families regarding positive research and international collaborations in regards to epilepsy medicine safety, aka pharmacovigilance.
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More about Rebecca: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/rebecca-bromley-pharmacovigilance-sodium-valproate 
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary 
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👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
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👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson 
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📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com

Thursday Feb 23, 2023

Hear about common fears of dementia, other causes for dementia "symptoms", how to minimise dementia risk, and more! From adult neurologist & neuroscientist of MGH & Harvard Medical School, Alice Lam. This is part 2 of 2.
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More about Alice: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/alice-lam-will-i-get-dementia-epilepsy-alzheimers-risk-minimisation
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary 
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👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
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👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson 
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📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
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Thursday Feb 16, 2023

Alice Lam: Lam Lab, Massachusetts General Hospital & Harvard Medical School, US 
Alice explains the bidirectional relationship between epilepsy and Alzheimer’s Disease. This is part 1 of 2. 
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More about Alice: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/alice-lam-epilepsy-dementia-epileptiform-activity-alzheimers-disease
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary 
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👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
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👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson 
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📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
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Thursday Feb 09, 2023

Oliver and Torie speak of ways to speak about and improve the sex lives of people with an epilepsy (should they need it) - from both the clinician and patient perspectives.
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More about Oliver: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/oliver-henning-sex-epilepsy-02 
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary 
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson 
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com

Thursday Feb 02, 2023

In anticipation of Valentine's Day(!), epileptologist & psychiatrist Oliver Henning speaks about the common sexual challenges amongst some people with an epilepsy. Last time we checked, the majority of people with epilepsy were, on paper, sexual creatures, but, indeed, many can struggle with their sex lives - at times - a little more than those without epilepsy. Learn more through an open chat with Oliver. This is part 1 of 2.
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More about Oliver: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/oliver-henning-sex-epilepsy-01 
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary 
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson 
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com

Thursday Jan 26, 2023

Adult neurologist Abril Marone speaks of her sensitivity in managing the patient experience from paediatric to adult care, plus speaks of how important it is for patients to be able to speak about sensitive, personal concerns; such as sexuality.
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More about Abril: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/abril-marone-patient-transition-paediatric-adult-care-sexuality
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary 
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson 
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
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Thursday Jan 19, 2023

Valentina Galassi Deforie, a final year Ph.D. student of the UCL Neurogenetics Lab, speaks of using frog eggs to research the epilepsies and some new mutations discovered - e.g. those of the KCNA6 and NARS1 genes!
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More about Valentina: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/valentina-galassi-deforie-frog-eggs-research-epilepsy-KCNA6-NARS1
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary 
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson 
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com

Thursday Jan 12, 2023

Stéphane Legriel tells us about the ICTALGroup - an organisation formed of neurologists around France who share knowledge to improve the care of people experiencing status epilepticus.
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More about Stéphane: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/stephane-legriel-02 
------------------------------------------
Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary 
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson 
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com

Thursday Jan 05, 2023

We hear from Stéphane Legriel: a Critical Care/ICU physician with a passion for helping people with experiencing status epilepticus - an ongoing, very dangerous, epileptic seizure. Stéphane tells us all about different types of status epilepticus and emergency care for people who experience it.
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More about Stéphane: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/stephane-legriel-01 
------------------------------------------
Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary 
------------------------------------------
👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson 
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com

Thursday Dec 29, 2022

Scott Perry tells us about identifying and challenging racial disparities in epilepsy care, followed by a chat about brain art - an important method of communication when it comes to epilepsy, neuroscience, and more! This is part 2 of 2 with Scott.
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More about Scott: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/scott-perry-02 
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Book mentioned: "The Maths of Life & Death" - Kit Yates: https://www.amazon.co.uk/Maths-Life-Death-Kit-Yates/dp/1787475425
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary 
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Artists mentioned 🎨
Dana Simmons: https://www.dana-simmons.com
John Bramblitt: https://bramblitt.com
Stephanie Gowdy: Alyrical.com
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👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com
------------------------------------------
👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson 
------------------------------------------
📲 Join me on social media!
- Twitter: https://twitter.com/torierobinson10
- LinkedIn: https://www.linkedin.com/torierobinson
- Instagram: https://www.instagram.com/torierobinson10
- Facebook: https://www.facebook.com/TorieRobinsonSpeaker
- Website: https://www.torierobinson.com
 

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